I'm new to this but hoping someone can advise me.
I was diagnosed with RA (serum negative) about 5 years ago and still haven't manage to get it to a manageable level without steroids. The only time I have ever been assessed without steroids was before diagnosis. I have now been on IV Tocilizamab (along with steroids and Methotrexate) for over a year and on paper I am now looking good. My consultant tells me I'm in remission but as soon as I come off the steroids everything flares up again. He tells me this is all Osteoarthritis but I am not convinced. It is hard to get to see anyone (three days for a telephone helpline reply by specialist nurses and 6 weeks wait for the rapid (????) access clinic appointment.)
I've come to the conclusion I need a totally new look on this and am willing to pay for it, but what I don't want is someone with the same "sight" as the consultant I already have as after all this time I'm sure something is being missed. So my question is how do I find someone good with a different outlook and someone who will look outside the box? Can anyone in the North West area of England recommend anyone? Am I better looking for an all round Auto Immune specialist rather than just a RA consultant? Thanks for listening/reading.