UK Online survey- Your experience of RA

NRAS would like to invite you to participate in a survey of people living with Rheumatoid Arthritis (RA) in the UK being conducted by a leading pharmaceutical company.

The aim of the survey is to explore the experience of those living with RA including perspectives on diagnosis, as well as the level of confidence patients feel they have talking about their condition to their doctor, friend or family.

The survey builds on the outputs of a workshop that took place in August 2015 in central London, where six patients talked about their experiences going through different stages of the condition. The workshop was sponsored and facilitated by a pharmaceutical company.

The data collected from the survey will form part of a disease awareness campaign aimed at policy makers, parliamentarians and medical professional bodies, as well as the general public.

The research will take the form of an online survey lasting approximately 20 minutes, which you can complete in your own time on a computer or tablet device. A series of preliminary questions will be asked before the survey to assess suitability to take part in the study.

You will be asked questions about your condition including experience with diagnosis, level of support and information offered by your healthcare professional, and your level of comfort discussing your condition with friends, family and healthcare professionals. No data collected will be attributed to individual respondents with all data strictly anonymised.

The researchers are working with ComRes, a leading UK research consultancy who will be responsible for analysing the results. ComRes operates within a strict code of conduct to comply with all data protection legislation.

The study is being conducted by a pharmaceutical company, but none of the questions are of a marketing nature.

Some of the questions relate to different treatments you and other patients may have taken for RA. Different patients sometimes respond in different ways to the same medicine, and some side effects may not be discovered until many people have used a medicine over a period of time. For this reason, the pharmaceutical company conducting the study is required note details of any side effects/product complaints related to their own products that are mentioned during the course of market research. Although what you say will, of course, be treated in confidence, should you mention during the discussion a side effect when you, or someone you know, became ill after taking one of the company’s medicines, or a problem you have had with the company’s medicines they will need to report this, so that they can learn more about the safety of their medicines. Are you happy to proceed with the interview on this basis?

Participation in this survey is voluntary and you have the right to withdraw at any time.

If you wish to participate please click this link surveys.comres.co.uk/wix/p1...

If you have any queries about this survey, please contact Lincoln Hill at Lincoln.hill@webershandwick.com.

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