Steroid trial: Hi everyone, After what seems like an... - NRAS

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Steroid trial

yorkshiregirl44 profile image
5 Replies

Hi everyone,

After what seems like an eternity i am starting on a trial of steroids on wednesday for susspected PMR. I remember posting on here and getting lots of useful information from members who had symtoms which i could relate to. Im still not 100 sure i have this condition but will probably know more when iv been on steroids for a short while.

It was my endo who susspected PMR and asked my GP to start me on steroids, a had been presenting with typical PMR symtoms at my doctors but the dots were not joined and i was told i had fibro and M.E.

Another member on here told me of the PMR site which has been a godsend to me.

I am living in hope that i might soon start to feel better but also a little afraid of the medication and its side affects. Like most conditions if it does turn out to be PMR i am at the beginning of the journey.

Thanks for everryones help and will keep ypu updated of my progress.

Christine

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yorkshiregirl44
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5 Replies
oldtimer profile image
oldtimer

PMR is one of those light bulb conditions - no-one thinks of it and then suddenly when it's suggested everything fits!

I do hope that you find going on steroids transformational.

yorkshiregirl44 profile image
yorkshiregirl44 in reply tooldtimer

I hope so too...but whatever it is maybe they will take it seriously now and not fob me off with it being fibo.

Thanks Christine

frranny profile image
frranny

Hi, I was started on steroids for suspected PMR, and all symptoms fitted. The effect was immediate and I was convinced that finally the doctor had worked out what was wrong with me - however, apparently I wasn't as better as I should have been and was referred to rheumatology. It seemed that as the steroids hadn't worked 100% it wasn't PMR but PMR onset of RA. The process of having to jump through all the hoops can seem interminable so I do hope you get a right prognosis soon

yorkshiregirl44 profile image
yorkshiregirl44 in reply tofrranny

Hi,

IV been told i should feel really well after a couple of days if its PMR.

I tested negative for RA factor so medics are going Down this route.

I know what RA is but not sure about PMR onset of RA...is it all the symptoms of PMR but what actually RA.

Thanks Christine

frranny profile image
frranny

Hi, Sorry for delayed replly - I only bother to update mail every few days. I suggest you read all info regarding PMR and RA on the NHS website, here and on the NRSA website - I'm sure you;ll find more info0 there than I could ever know about. Good luck

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