Good morning everyone. Well this week has been the hardest i have had for a long while. Yesterday i was at the drs. as i was feeling so ill. I ended up crying in her room. The upshot is my fibro/cfs is kicking my butt big time at the moment. Wednesday i could hardly move with the exhaustion and tiredness. I have not done anything except sit or lay down because my engine had no fuel. It took the dr. (bless her) to make me realise why i was feeling as bad as i was. Damn diseases they take so much away from you.
A friend posted me a photo taken seven years ago at her hubbys fortieth birthday party. It reminded me how much i have lost in that time. Then i only had RA, since then i have had Fibro(four years ago) chronic fatigue syndrome ( two years ago) and just recently i have got Menieres disease as well. I wonder when it will ever end for me. So all i can do at the moment is sit and try to look beautiful ( yee right)
So i hope you are all feeling as well as you can be. Hugs to all who need one.xxx
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sylvi
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Sounds your in a bad way, what I find with my fibromyalgia is that when I have a flare up I rest and sleep as much as possible, (not easy) I know but with a little help from my melds namely Amitryptoline, to help your muscles relax when asleep, if you feel a tiredness coming on you really need to rest and hopefully the flare up won't last too long.
Personally apart from the pains I think sleep is the most important way of controlling fibromyalgia because once your body has rested it can try to heal itself.
I've had fibromyalgia for around 30 years and along with my other ills I find that sleep as deep as you can will help in the long term, don't fight it because fibromyalgia will win, what I have found helpful is that once you learn to accept your illnesses you can then learn to work along side it instead of fighting you'll find things will ease off enough for you to cope with.
I hope this helps you control your Fibro, it does me but then we are all different.
Talking about it and finding what it is is half the battle for me Philip,when i know what i am up against i relax. EG; i have been having problems with my eyes swelling and being puffy and dark,now i find out through a site on f/book that it is a sign of fluid caused by fibro,so thats another problem solve.xxx
Sylvi I really feel for you - I'm exhausted today after a terrible night of my nerve pain, nightmares and sweats. My GP was so fixed on the ten minute rule this morning that I rushed through my list and came out with more prescriptions and a print out of a skin biopsy which tells me nothing is wrong with my small nerve fibers. It takes nothing to take me down into gloom so I went for coffee with a friend and heard all her news and spilled mine. This has helped cheer me a bit more than any doctor or drug. Been up since 2.30 am and still don't know why I'm dizzy all the time or have pins and needles everywhere but the worst thing is, as you say, not knowing. The second worst thing is, as Philip says, not getting enough sleep. These two go hand in hand of course as you lie there in the early hours wondering what on earth is happening to you. Also sleeping during day is a disaster but what else can we do. I only get a good night's sleep on the highest dose of Zopiclone now and am only allowed one every other night. Not ideal but steroids don't help the insomnia either.
All I can say is that you aren't alone with your problems and at least you do have a name for them and a kind GP.
Hi Sylvi......I hope and pray that the flare updoesn't last long and you're feeling as well as you can do very quickly.
Don't underplay your beauty......you have a lovely soul and that is true beauty, which is just as visible as physical beauty to anyone who's looking. Hugs to you too, gentle brave lady x
So sorry to hear you are having a rough time of things. Hope this phase passes quickly and you feel brighter soon. X
hi, sylvi sorry to hear its knocked you down again. Hope its not long before you bounce back. Try and keep your chin up. Hope you get plenty of sleep and rest and do just what you can manage. Its hard but we all know you will come back and show us plenty of new photos.
Darling lady of the variegated hair, you don't have to try to look beautiful, you just are. Your words, your kindness, your intelligence, your sense of humour, and (of course) the package they come in are spectacularly lovely. So, yes. The disease takes much, and I'm sorry for what it's taken from you. But you remain, and you are lovely. Many, many hugs,
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Flare!!!
Long time no see!
If you have fibro with RA are you given meds for fibro as well ? 
