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Crazy time!

I haven't been on here for a while although have looked in occasionally.

As well as having RA I've also had my diagnosis of Cushings Disease confirmed due to a pituitary tumour; I'm now waiting for a date for surgery - it's taken 9 months to get here, it will need 2 surgeons to operate and they only operate 2 days a month & ofcourse it's the summer holidays!!

The RA isn't too bad but the pain & the muscle weakness from the Cushings is intense, so much so that I am considering getting a mobility scooter as I can't walk very far! I was walking further just after I had my knee replaced!

Ironic really, my body is producing too many steroids & it's having a disastrous effect, yet steroids are given to us to help with inflammation but too many can do a lot of damage!

I've also had laser surgery on my eye to prevent glaucoma.

And I'm waiting to have my foot operated on but they won't do that until the pituitary is sorted as I'm too high a risk!

At least it's summer & the weather is being quite nice!

2 Replies

Wow, all that and you actually still sound positive!

I hope you get the op over and done with and that helps you get back to more normality .

Thinking of you x A


I was wondering how you are, it sounds as if you've been having a rotten time, but at least there is a glimmer of light at the end of the tunnel. Hope you don't have to wait much longer for your op, and it is husband has a cousin who had Cushings, and after the op he never looked back, it was a fantastic result.

Do keep in touch, best wishes, Mavis xx


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