Hi everyone, hope you are having a good day.
Just thought I would give an update. Haven’t managed to get in to work today, feeling very tired and sore after having my joints squeezed, bent and twisted every way yesterday. Saw my Rheumatology Nurse and was so pleased for this appointment as I am beginning to struggle. More joints have decided to join in, some are very painful and hot. I had my knee drained recently and it was such a relief to be able to bend my leg again and move around easier. Although it isn’t as swollen now I have started to get increasing pain and something at the back of the knee feels as though it is clicking and catching, hard to describe, and I am unable to kneel down as it feels really sort of bruised. The Nurse said there is some swelling and it needs investigating further, not sure what she means by that but she is going to report back to the Consultant. My right wrist and little finger are swollen and sore and she thinks they could be aggravated by using my stick so wants the Physio to check and see if I need a different stick or some sort of joint protection, I have an appointment next Thursday so will mention it to her then. My neck and shoulders are also playing up again and turning my head can be difficult at times so not sure if she will start acupuncture again or just exercises. My left ankle has now decided to join in too and the joint at the base of my big toe, it is extremely painful after walking for around 20 minutes so again this will be reported back to the consultant. My liver test result was slightly raised but it has been decided to increase the Methotrexate from 15mg to 20mg to try and get things under control. I also have Sulfasalazine, Omeprazole, Folic Acid and Co-Codamol. They have just now added in Naproxen, two twice a day. I have read the leaflet on Naproxen and it’s quite scary reading, but if it helps it is worth trying. What are your feelings towards this drug, has it made much difference to how you feel. I am just hoping that the increase in Methotrexate and extra drugs doesn’t put me back at square one with the Migraines it triggered when I first started on it, as I was beginning to feel ok ish taking 15mg, the Migraine and brain fog had certainly reduced. Well I will try it and see. Waiting for another workplace assessment as I moved to another office recently. I have had another Occupational Health Assessment but it feels like it has been a waste of time, my Line Manager isn’t acting on anything they recommended, she just said to let her know when I am not feeling good and she will note it against my targets. She also said she will have to look at what I am allowed to take off as she has to consider business needs and isn’t going down the route of restoring attendance yet but if I am going to be ill on a Friday after taking my Methotrexate Thursday evening then she needs to know how long this is expected to last. I told her that I always go in unless I really am unable to. Having said that I have only been off two Fridays at the start of my Methotrexate. I understand she has to think about the workload and has to follow policy, but she could show some concern for me too, or am I being too touchy? For once I am being selfish and thinking about me and my health. Sorry just feeling a bit ‘off’ today.
Take care everyone. Hope you are pain free. X