Last week I saw my specialist nurse having been on a break from methotrexate for 3 weeks. I told her my brain fog was much better, tiredness improved and sore throat cleared up. It's a little early to tell if the hairloss is improving but I'm feeling hopeful. So as my esr was only 5 and my hands and wrists were only a little more sore with no swelling or redness she advised I stay off drugs for now and be reviewed in 6 weeks. She suggested I look at the literature on Leflunamide and Sulfasalazine in the meantime.
What a difference a week makes Gradually my hands have become more stiff and painful. The pain radiates from the hand right up each arm to the shoulders. A sharp, burning hot pain accompanied by aching muscles. To top it off the joints on my feet have become steadily more swollen and painful so now I'm crabbing down the stairs and hobbling around with a really attractive limp. This is not good news when attempting to walk the dog or worse still face a 4hr shift on my feet in the shop tomorrow and Thursday.
I've left a message on the helpline to request a call back as I think I need to go back onto medication now rather than give this 6 weeks. I've looked at the alternative drugs and think I may ask to give sulfa a try. Feeling that familiar apprehension that accompanied the initial diagnosis and starting methotrexate. Some say the treatment is worse than the disease but at the moment even the fog of methotrexate and handfulls of hair feel an attractive prospect. I wish it had worked for longer and even find myself wondering if a 2nd try could be useful but I think it's just the fear of the unknown again. So two fingers up to ra, I'm going to do my best to beat you back into submission. I think a nice warm swim this afternoon may help....Damn I need to wait in for my nurse to call back and the message said during busy periods this can take up to 2 days! I do hope today is not a busy period.
as a footnote....I'm really fed up of being an angry jack Russell but can't change my picture. The blue bar comes up but then just says my picture viewer failed? Any hints would be very welcome