I must look so good at work had to take the day off before a 4 day long weekend as I can;t really get out of bed and in such pain it is ridiculous. I have crashed and burned badly for some reason. I rang the rheumy nurse and she said the enbrel should be delivered next Wednesday so only another week to wait. Kudos to her that she chased it up for me. I told her I am upping my prednisone to 10mg and will bring it back down when I start the enbrel as I cannot live like this
Great now I'm flaring: I must look so good at work had... - NRAS
Hahah I am with you there. Stupidly I have to do the last two of the 7 DMARDS on the list regardless of whether of how they may affect me. I would think after proving that four on the list I had adverse reactions to and now on to the ones they may prescribe only three tomes a year to patients that I may have jumped through enough hoops but the health system is inflexible here so I will go on and risk more liver damage. Oh well onward and upwards
I will be eagerly awaiting how you do on Embrel, I'm hearing it can kick in fast so I hope that's the case for you.
My Embrel won't start for a few weeks as I have to have a clear stool same fone from my CDiff infection.
I went to the lab today, with my frozen sample and they said the hospital gave me the wrong container and this can affect the lab results. I can't poop on demand so I will go back on Saturday to give sample. Then it's likely a two week wait as the sample has to go to the Ministy of health for testing. Then if it's clear I can start Embrel.
-I also have to have training even though I already injected Humira and did MTX injections for almost a year.
The steroids can take a few days to a week to really notice a difference. Yes, when things go bad, they go bad fast for lots of us unfortunately. I really hope your treatments work and you find some relief. Good idea too! Wait later in the week to inject.
Oh no that is terrible. How annoying. It is amazing how many things people stuff up in the medical profession. I don;t know but it seems to be getting worse and I wonder if like here in Oz it is because of overload, too many patients and not enough resources. OI hope the test is Ok and clear for you.
The rheumy nurse told me the same about enbrel and I am really hoping it is the same for me and for you.
Oh no, glad you have some steroid cover until the new drug kicks in. Be good to yourself, rest , use heat and cold pads and gentle movements. Try not to worry about work when you are flaring it will only make the flare worse! But do you have union support in Oz so you can explain to your work how poorly you are bug hopefully things will improve on your meds?
Thinking of you xx A
Sorry to hear your experiencing a flare right now I do hope the steroids take the edge off until the Enbrel is delivered, I too am starting Enbrel next week with any luck I am still waiting for my first delivery, do let us know if you feel it's working for you. I can't wait to take it I am hoping this will be my wonder drug with no side effects I hope it will be for you too 😄