Just wondering if people think that because one has RA, Fibromayalgia or any of the many connective tissue diseases and complications that cause wide spread pain are all crazy, just pretending for sympathy, or just trying to get attention. The answers that I've gotton from pain specialists, and rheumys include: you must exercise, lose weight, change diet, are you taking meds correctly, you must move about, take swimming arobics,take P.T.. They will do or advise most things except give you medications that work, continue to work, or increase the dosage of pain medication so that they continue to work.!! Most pain meds stop working once you've taken them for so long. Most of the biologicals and dmards can either make you better, feel worse from side effects, both, or give you a completely new disease. Now, one would have to battle two illnesses. For 15 years, I've taken pain medication for pain, around the clock. If , I didn't, I could not function, or move. I cannot take biologic meds due to having been exposed to T.B.
So instead of slowing the progression of the disease, I'm basically treating pain and not the disease itself.. With the exception of steroids from time to time, and anti imflammitories.(asprin, and advil). I also will add Tylenol.
At least other diseases like a cancer, the doctors will give you large doses of pain meds without so much scrutny . It's like this illness (RA) means you're not really in pain. Or, maybe we need to really prove it but how.??
The real question is --- that I'm just wondering is it just me or does anyone else take this disease serious or know that it causes widespread debilitating real pain. It may be just me being tired of being tired and in pain despite pain meds. I guess it could be worse. Sorry for the rambling.