So today I went to see the Rheumatologist for my follow up after all the blood tests and scans. It turns out I have a very high Anti-CCP which Im told is very specific to RA. Plus I also have ANAs test positive for autoimmune diseases. The other tests like ESR, RF and CRP were not positive.
So she wants to repeat these in October. She now wants me to have Ultrasounds of my painful joints to see if they show synovial fluid so that she can tick all the boxes for a precise RA diagnosis but most of all to assess whether I should be starting treatment or wait..
Im sick of all these scans. These last couple of weeks have been crazy! Been running around for scans and blood tests. So exhausted but of course im glad she's so thorough and wants to make sure to make the best assessment.
Did anyone have my same experience? She thinks that although i do have symptoms and I've got a high risk of RA my disease stage must be very early days. Fair enough. I would just really like to feel better soon and be given treatment. Ive never felt so awfully in pain, tired, old in my life 😔😢👵x