Cold Legs : Anyone have cold legs from knees down or is... - NRAS

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Cold Legs

Marm profile image
Marm
4 Replies

Anyone have cold legs from knees down or is this a different issue from RA?

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Marm
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miss-scarlett profile image
miss-scarlett

i would say it is due to it being an auto immune symptom, i have the same and i dont have RA but another type of auto immune called vasculitis, which shares many similar symptoms to each other. my legs are purple from being cold

earthwitch profile image
earthwitch

I would definitely report that to my GP - it could be a neurological symptom of some kind (paraesthesia, or abnormal sensations). If you are on anti-tnfs, then all the more important to report it (to your rheumatologist or rheumatology nurse) as they may want to rule out a drug induced neuro condition.

Marm profile image
Marm

Thanks for your replies. I don't have any discolouration and if I wrap up my legs in bed they're ok. I'm on Retuximab which seems to be working (fingers crossed). I will mention this to gp and consultant at next appointment.

oldtimer profile image
oldtimer

Yes, often feel cold and often also a feeling as though sparklers are hitting the skin! They think mine is due to nerve damage either due to the RA or due to the medications... can't win.

I've had for a a couple of years and it hasn't spread or got any worse if that's any comfort.

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