I've had RA 10 years now, but only just joined this group as I feel lonely.
I don't feel that my friends understand. They try to include you, but going out clubbing is now my idea of hell. I used to love to dance, but can't anymore and it's torture. I look ok, good even, but that can add to the problems.
I live and work in London and use a walking stick to be able to get a seat on public transport. Without it nobody believes there is anything wrong with me. I used to sit on the floor of a train and then have to ask for help getting up - humiliating!
I'm lucky that I've kept my figure and I take pride in my appearance, but that just makes others perception that anything is wrong with you even more so. I have a wonderful husband who has stuck by me, which i am totally grateful for. I miss being able to wear heels and the some of the beautiful rings my husband has bought me thanks to my deformed hands and feet. I miss having girlfriends that are happy to just sit in a coffee shop or pub and chat.
Does anyone live in the London area? It would be good to have a support group that I could meet up with.