Thank you to all who have replied, read and tried to advise.
My update is as follows, Rheumy going to try me on Rituximab, after Humira failure, also confirmed that my skin problems are vascilitus - finally another confirmation. I had a very detailed appt with the top consultant who was quite amazed at the ulcers on my fingers and elbows, am so glad I took photo evidence.
Got to go start back on methorexate but 5mg weekly coz cant really tolerate it due to giving me severe depression - but I can handle that ....
My Consultant really tried to push fibromyalgia again coz im rf negative, anti ccp negative, low esr but always raised crp, I said can you get vasculitus with fibro????? He then said no - so had a DAS score done again, chest x ray, blood test and got to reapply for funding, so lets see how it all goes now.
Well thank you for reading my latest update and for your views.
Love, light and health to all xx