Infusions ?

Haven't read the literature about infusions yet as only just in the process of changing meds in the new year anyone had infusions

[Mishelno64]

Hello I have been on Reducate infusions for 12 years and it is a Miracle. I have not had any side effects At all if I ever had to go back to the days before remIcade u would be devistated. I wish you the best of luck .

[Needforname in reply to Mishelno64]

Mishelno64 Hey there. I know this is an older post, but I'm at the point where infusions are my next option after LDN, Methotrexate, Prednisone, and Enbrel haven't worked at all for my seropositive RA.

I'm curious if you also had no luck with other drugs like MTX before you tried the infusions? Thanks

[NeonkittyUK]

Hi Callie,

I have responded well to my first duo of Rituximab infusions in April and ESR good for me/CRP kept low. My ESR was 80's and last 23 and CRP 45 pre Rituxi and has twice stayed under 5 now in my 3 and 6 monthly blood tests. Inflammation of joints and mobility improved, but suspect I may need another duo soon - not sure if weather is making me tweaky or needing another infusion ( the usual repeat time is 6 months) so I have got to 9 months which is not bad at all. Before Rituximab little except steroid shots would bring the inflammation levels down and the only side effect I had on Rituxi was feeling tired for about a week after having the first one. Have a look at the NRAS info on the infusions, and there are many people on here who are more established on the med, having had several/lots of infusions and been having them much longer than myself.

Good luck,

Neonkitty x

[Needforname in reply to NeonkittyUK]

Hey NeonkittyUK . I know this is an older post, but I was just curious if you were still having luck with your Rituximab infusions? After no luck with Methotrexate, Prednisone and Enbrel, infusions are my next step. It seems I have to go with what the insurance tells me, but I'd like to go in to my next appointment informed on what option is the best/safest. Would you recommend the Rituximab over any others you've tried? Also, how long did it take for the infusion to work for you? I hope you're still experiencing success. Thanks.

[Rosieapple]

Hi, I am having an infusion of Mabthera (Rituximab) on 9th January for the first time. I am nervous about it and posted a question under the heading Mabthera . I got some very helpful replies which helped put my mind at rest. Try a search for it under Mabthera and I am Rosieapple on here, as their replies will answer a lot of your queries I would think. Good luck with your infusion.

[Ozzy]

I tried rituxmab first but sadly to no effect. I am now on tocilizumab which has reduced my crp and esr to almost zero. The only drawback if any is going to hospital every 4 weeks. With rituxmab it's twice every six months. The infusions themselves are nothing to worry about, the staff are great.

[cathie]

I had infliximab for years and it worked very well. It was good that they monitor you very carefully on this. I hope it works well for you,

C

[paulapips64]

I had a lidocaine infusion it didn't do anything for me x

[Hidden]

Hello Callie - I have just completed my first two rituximab infusions, and seem to have more energy than I have had for years. I wish I had had it this time last year before going to USA to spend Christmas with my daughter and family when I was like a wet rag, and managed to end up on antibiotics with a chest infection. I still get tired but the pain and stiffness is so much better. This had to be kept under control with steroids before. Also, the dreaded brain fog is disappearing! The only downside has been the dose of Piriton given to me before the rituximab. Piriton has always the ability to knock me out, so I have spent each infusion day snoring away quite happily. This effect has lasted for a couple of days, but after that all has been ok.

I still get the fibromyalgia and osteoarthritis pain, but these I can cope with.

Good luck. I cannot recommend it enough.

[allanah]

Had remicade which didn't help but now Abatacept infusions which are on the whole improving joint pain and tiredness x good luck and be positive we are lucky to have these drugs around yo help us xx