Good evening everyone. I am still in a lot of pain from the flare. I saw my dr the other week and i was in tears and he said he couldn't give me anything else and that i would have to speak to my rheumy. So i ring my nurse at the hospital and she upped my sulpha and increased my steroids. So last week i order some more sulpha and when i got them today they had only given me enough that i have been on. I had given them them the details from the hospital so you would think i should be trusted to take my drugs properly. So i was there today for a repeat prescription and i i asked about the sulpha and she said because they hadn't had a letter from the hospital they couldn't give me the extra i needed. I went mad i couldn't believe it. The receptionist rang my rheumy after i had given her my number to ring. On Wednesday when i go to the drs to get my prescriptions i am going to speak to the practice manager and make a complaint,also on Wednesday i will also speak to my rheumy nurse to complain as well.
I am still in a lot of pain and so exhausted it is unbelievable. Saturday it was the poppy launch in Nuneaton as my hubby is a veteran and my daughter is the standard bearer for the branch. So i was down there all morning and then Saturday my daughter laid on a poppy party at the club and i went. Since i have been absolutely exhausted,yesterday i was in bed by 2 pm. Tomorrow morning i am going to London to the tower to see the poppies and i know i will be in bed as soon as i get home.
Hugs to everyone.xxxxx