Such a lot has happened in the last few weeks!
For those that don't know I have finally been diagnosed with Palindromic Rheumatism, (a rare form of Rheumatoid Disease for those that don't know), after fighting to get a second opinion and being fobbed off initially with a wrong diagnosis of Fibromyalgia. I knew that Fibro was wrong and have known for months through my own research, that it was PR, but having it finally diagnosed a couple of weeks ago was a massive relief.
I am currently on BuTrans patches, which after a bad initial few days I am now tolerating well, but it's not doing much for my pain. I still have daily breakthrough pain that peaks around an 8/10 so I have to take extra pain meds on top most evenings when my flares peak. What are your experiences with BuTrans?
My rheumy wants to start me on Hydroxychloroquine next time I see her, and in the meantime have been instructed to take high strength fish oils as in some people this can help.
The reality of treatment, the side effects and the impact it will have on my life is starting to sink in now and my new anxiety is how I will cope with work and life in general in the early days when I start Hydroxychloroquine.
I've not heard much that is positive about it, people generally seem to say it takes at least 6 months to work and only works partially for a short time.
What are you experiences of Hydroxychloroquine??
Big love to you all, and if you'd like to chat on Twitter, you can find me here: twitter.com/tHe_PaLiNdRoMiC