I have followed many of the posts on the RA site, and listened to the terrific variation of this illness. And following a conversation with my rheumatologist I now agree that the condition RA should be renamed Rheumatoid Disease. When you say RA to someone it's not taken seriously as people will comment " yes I have it in my knee ". It is also still seen as a condition afflicting the elderly. Like many of you mine bares no relation to the general perception. When I started this journey I would never have imagined the complications of RA. The cells, the antibodies, the deviousness of this disease. Mine has impacted everything from my joints, my skin, my lungs, my kidneys, in fact my life. The NRAS do a fantastic job fighting our corner and getting people to listen. I am now going to look at ways to get government etc to understand our disease and our fear. As fear is a major part of this disease, the fear of the unknown. So let's help in every way we can.
Hi, I absolutely agree with you...when you tell people you have R/A they think it's arthritis and have no idea how it affects all our body...I'm with you on this one...and will help if I can..maryx