I am still in a lot of pain this morning. Yesterday was blooming bad and i mean very very bad. It was one of the worst days i have had for a long time. My back is crippling me and it is going down my right leg. I have a mri on the 12th and hopefully it will show something. My fingers are still very sore. I really don't know what is causing all this pain and to be honest my rheumy nurse was next to useless when i saw her last week. As it was my ra she wasn't interested. My consultant is so overwhelmed with patients he won't be working in my hospital no more so i am waiting for the next appt to see who i get. If i do things i suffer, if i don't i suffer. I wish there was an answer to why i am like this. My nurses answer was you suffer from chronic pain and sciatica and left it at that. Trying to get an appt to see my gp is like trying to get blood out of a stone,there is a minimum two week wait and he is t=my nominated dr for my chronic conditions and i can't get to see him when i need to.
Sorry for the rant,but i am fe up of being in pain. Hugs to you all.xxxxx
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sylvi
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Awwww Hun I feel for you its rubbishy trying to get into see a gp I had to go to a different surgery last week as couldn't get in ours had X-ray on right hand as it keeps swelling so waiting on results for that also more blood tests knee is playing up again cos of the damp weather let's hope u get sorted soon Hun xx
I can understand how painful it can be, I really feel for you. RA is something we cannot wait, so my suggestion is to change to other doctor if you can. Take good care and get your treatment as soon as you can.
Fell rough again this morning. I can't win at the moment.Dr wants me to have a chest xray which i will be getting this morning, also have to take a pleghm sample as well.Thank you all for your lovely words. Love you all.xxxxx
Hi Sylvie, Oh you poor thing; isn't awful that although they know all about this disease and what it does to us they still give us any cure or relief when we need it most, you wait years to be diagnosed then months of treatment before they find the right one then a fews years down the line we start all over again suffering the pains as at first. I'm now having flares all the time my bloods have gone haywire and like you when you see the rheumy nurse all they can say is come back in a year! apart from monitoring they seldom can help ease the pain. I hope when you see the GP something positive will come out of it. I love it that you are always there for anyone, lets hope this time someone is there for you, you are special. Love Carol
Sylvi, I am so sorry things are soooo bad for you just now. I just had to let you know how much you encourage everyone here, even when your news is not good. I always look for your posts as they lift me up and I like the photos as well. We are in Cornwall at the moment staying with my sister and brother in law and they are talking good care of us, taking us to all sorts of places. But I think I will have to ask for a couple of days of doing nothing soon as it's tiring me out - such a pity. But i take lots of photos whatever stake i am in and then i can look back on the good times we had.
With regard to GPs, I have taken to booking appointments every month a month in advance, if you follow me (we can do that on line) then if I don't need the appointment I just cancel in good time. I suppose you could do it more frequently of you felt that would help. That won't help with your present need of course.
I have noticed how many people on here say that they have learnt to be much more assertive than they used to be and I know that is true of me. If I am in a lot of pain or very worried about something and I I need to see a doctor then it is important - even an emergency! And many GP surgeries have emergency appointments each day - though you may not get to see your particular doctor, as I am sure you know. Sometimes we feel guilty that we are not actually dying (though some of you are very ill) and we know how much the NHS is stretched ....etc. .... But it is not our job to make decisions about the use of resources, we can only make sure our voice and our needs are heard and respected, and we have a responsibility to all our brothers and sisters with cronic conditions to speak up loud and clear. (Scuse the rant)
Thank you darling for your very wise words and encouragement it is very helpful. Love you and all the lovely people who have taken the time to answer my post.xxxxx
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