Week six of Methotrexate 10mg and ............. - NRAS

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Week six of Methotrexate 10mg and .............

hev53 profile image
12 Replies

pain in hands worse than ever.Feet burning. I am due to increase to 15 mg next week. Then six weeks after I go to 20mg. Feeling quite low at present and fed up with the pain.

Anyone else not had any joy with Mxt? Or am I impatient. It's not just the pain is it, it's the horrid feeling you get with it and the tiredness also.

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hev53 profile image
hev53
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12 Replies
allanah profile image
allanah

Give it time sweetie, but why don't you call the Rheumy helpline? They may be able to offer you a steroid jab till the drugs kick in.

There is nothing worse than the pain you are feeling, can u take your anti inflammatories and use your heat/ cold pads overnight.

The therapy can be hard but if it works it will be worth it.

Or maybe they will want yo change your drugs when you talk to them but sometimes it's best to increase and see what happens.

But get advice tomorrow,I wish I could bundle you up in cotton wool tonight , sending pain free hugs xxxxxx

hev53 profile image
hev53 in reply toallanah

Thankyou I just feel a little sorry for myself I think. What is the Rheumy helpline? Idon't have a Rheumy nurse. This Trust haven't invested in one. I can't take anti inflammatory s because of gastritis . Flipping state! Lol xx

allanah profile image
allanah in reply tohev53

In our hospital we have a contact number for the hospital Rheumy department for advice ? If you don't call your rheumatologist secretary explain your situation and ask her what to do, that you can't stand it anymore.

I'm not surprised you are fed up, it's do exiting to start your mtx but it can take a but to work, but my Rheumy did give mea steroid jab just whilst it was working . If you can't use anti inf then get you pain killers into you, regularly ! Lol !

I hope there is a quick light at the end of this tunnel. But don't lose hope if on the increase it doesn't help ,there are lots of other dmards but sort out this flare tomorrow.

You can always phone your gp too of course , lots of love and I hope you get a little rest tonight xx

hev53 profile image
hev53

I will do my best! Going to phone the GP tomorrow. I am on Co-codamol 30:500 . But they are barely touching it.

Thank you again and you sleep well too xx

allanah profile image
allanah in reply tohev53

Thinking of you xxxx

shasmac profile image
shasmac

Keep plugging away with the meds...mine took a good while to work but when I reached the 20 mg with the mtx there was a great improvement. Everything takes soooo long when you are in pain but I am almost pain free now so worth it..

hev53 profile image
hev53 in reply toshasmac

YYou are so right everything seems longer when you are in pain. I must learn patience! xx

sylvi profile image
sylvi

Hev53 it takes up to three months before you will feel the benefit from the mtx. Speak to your rheumy team and see if they can give you some help until they kick in. Hugs from me.xxxx

hev53 profile image
hev53 in reply tosylvi

Thank Sylvi, I am perhaps a bit impatient. xxx

hev53 profile image
hev53

Well , spoke to my GP and he has given me MST 5mg twice a day...................not entirely sure that's the way I wanted to go.

Susiej38 profile image
Susiej38

Hello! I know exactly how you feel. When I first started MTX I took it for 5 weeks(by injection) and gave up on it cause I saw no improvement, went to another DMARD which I could not tolerate, then got pneumonia and had to get off all until pneumonia cleared up. I am now back on MTX- week 12 of 20mg. and am feeling like myself for the most part. My Rheumotologist has had me on Pred also while waiting for the MTX to kick in and I am now weaning myself off that. I kept thinking something was wrong with me and even was questioning my diagnosis cause it took so long to feel the benefits. The first 4-6 weeks the MTX even seemed to make the joint pain worse the day after injections. It will start working. It just takes longer for some. The 2nd time I started on it I told myself I would give it 4 months and then I would make a decision. I am glad I have stayed with it! I sincerely hope you will be able to do so, too! Good luck!

hev53 profile image
hev53 in reply toSusiej38

Thank you all the responses give me hope! Really kind of all of you as always xx

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