After my last gold injection I felt very weak no energy breathless...nurse wasn't sure whether to blame gold injection or my anemia...I kept having weekly injections but I decided after the one I had Christmas Eve I would contact nurse to tell her how poorly I was after Christmas. Felt very poorly..I left message to cancel today's appointment New Year's Eve and Nurse rang me back last night to say my blood test was showing a rescillience to the gold injection...so explained why I feel the way I do..stopped injection until she speaks to my consultant and then phone me to have a chat...I'm not sure if they will discontinue gold injections or maybe reduce my dose...I do know this is my last dmard to try as all the other ones I've tried I haven't tolerated...I feel a bit fed up...as I've been like this since 2011... And nothing as yet has worked for me...I know we have to try different drugs to see which one works...but sometimes I think in my case the consultant has always said I'm a complicated patient...with numerous health issues so he finds it hard as to what drug will treat my arthritus without me feeling to poorly...appointments don't happen quick my consultant is a very busy man and I guess we are just a number,,,scary when its our health...I'm hoping for a better 2014 and hopefully more positive answers,,,wishing you all a healthy happy new year...and thanks again for supporting me....Nicola x
Hope...: After my last gold injection I felt very weak... - NRAS
Hope...
Oh Nicola, I am just going through the same myself ! Got diagnosed march. 2011 and have tried so many drugs including biologicals. I was to go on other drips but the Rheumy looked through my notes for a month and now wants to do more tests! I think itS so hard to keep patient when there is a lack of progress and you almost feel you need to prove to the docs you are ill and in pain! At least that's how I feel sometimes. Hang on in there and you are on their radar now like me, and maybe next year they will get us sorted out with a drug that suits. XxxxA
Hi allanah I'm so please there are people like you who lift my spirits and make me feel I'm not alone...your so right we've waited long enough now...I can't tell you how many tests I've had over the years and still having tests...it's a long long journey...I guess we just have to wait and hopefully fingers and toes crossed we have positive answers 2014.. Thanks again tc big hugs means a lot Nicola 
xxx
Hi Nicola, yes like you and allanah I'm going through the same trials with these drugs. It can be so frustrating and really get you down when you start a new drug thinking is this the one for me only to have it fail on you. We're all with you and you will get there with the right drug for you....I'm sure we'll all get there eventually. Try and have a Happy New Year celebration, I will raise a glass to you & everybody on HU tonight. Big hugs xxx
Yes I think I am gonna try hard to get some positivity back , tests and biopsies mean more answers right ? ! One drug doesn't suit, try another, and if all else fails ... Sob here and get hugsxxxxxxx
Nicola
We all the the contra indications of DMARDS and sometimes we need to take a rest from them.
Over the years I have been on the full list and all have been a problem. They changed my Specialist and He has started again, so I am now on Metojet a reduced dose and still ill.
The contraindications of RA can also us to feel low, so please do not be discouraged you are not unusual and you are proceeding down a well worn path with everyone on this site are following behind
BOB
Hi bob I agree and understand about all the drugs side effects trying and giving different drugs ago and how ra can be a huge impact too...as we all know and suffer everyday...but when your consultant doesn't know how to treat and what medication to give for a complicated patient with lots of other ongoing health issues as well as RA it becomes a very worrying wait...I have been told off many consultants I am unique because I don't quite fit the picture...even though I have RA..so more tests I guess...we are so lucky we can help each other on this friendly supportive site...and keep our spirits flowing...thank you for your reply Nicola x
Oh Nicola, this is so hard to deal with. We get our hopes up about a new treatment regime and then it's so disappointing when it doesn't work
I will echo what Luthien has said, you will get there, eventually and there will be a drug that suits you. And remember that new drugs are coming on line all the time. I don't know if you saw the news last week that scientists in America have now identified 42 genetic markers that are involved in RA - the great thing about this [and why they announced it] is that they will be able to come up with drugs that target an individuals particular genetic make up and this will be particularly important for those patients who's RA is not helped by existing treatments. The story was on the BBC online news page if you want to read it:-}
Big hugs,
Cece x
ps and very few people are successfully treated by the 1st DMARD that they try so the majority of people using this site will identify with how you're feeling x
Hi cece thank you for your positive reply...I will look into that as I missed that on the news...ooh that sounds promising...we have to live in hope...we are all different. Hopefully one day we will all be posting comments on here as to how good we all feel...pain free...lots of energy and living a normal life...hehe I'm dreaming now...wishing you a happy 2014 big hugs Nicola x
Hi thank you it means a lot....wishing you a happy heathy new year big hugs Nicola
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