Here is a short potted history of my diseases. I was diagnosed with ra in 2002 i think that was the year. Things were plan sailing for a few years. Then on my silver wedding anniversary i fell down the stairs and damaged my knee,resulting in a total knee replacement, then i had to have the ligaments stitched back. Since that operation i have had to have said knee re-done because they put a straight joint in a bent leg. It has been hard going and very painful and good old RA would rear its ugly head and kick me in the butt. I do know that unless you have experienced this disease then you have no bloody idea what it is like. A few achy joints is one thing what you and i have is something else altogether isn't it. I have a friend who has it and was parking her car in the disabled space and she got abuse from an old couple because they told her she didn't look ill,i mean what do they know.
I have had ra for over 10 years now and for the last 2 years i have suffered with fibromyalgia and just before christmas i was told i had chronic fatigue syndrome(me) all by products of the good old ra. Do i look ill, no i flaming well don't,but because people don't see me at my worst they have no idea and thats the way i like it as they would be frightened to see me in full blown pain and crying because you don't know what else to do.
So here is hoping 2014 is a lot better for us all and a happier one for us all........Love Sylvia.xxx
Written by
sylvi
To view profiles and participate in discussions please or .
Hi ya, haven't been on much lately but pop in now and then. Would it br wonderful if one day we woke up and IT was gone? Dream with me! A world without RA+++ NO pain disease sadness grief I thank God every day, no matter how I feel because one day all will be well. HAPPY NEW YEAR love Carol
Hi, I had the best nights sleep in a long time at my sisters, but boy, do I feel the stiffness and pain this morning. I have just popped all my painkillers and my sister said it is a nice day, we should go for a walk. I think we should as I haven't done very much since Christmas Eve when I came here and left work behind until the 6th. I hope everyone had a less pain holiday and all the best for 2014. All I ask for is a better year than 2013 which has been a really bad year, not just for me but people I know. I am starting off with a really positive attitude and hope I am well enough to go to Canada again and see my son and his wonderful family. They are a real tonic. lol Sue xx
Heres hoping we all have a Happy New Year wether we are at a party or staying at home. It would help if its all painfree (dreaming).
I am looking forward to a good all round 2014 for everyone including my family who are all very helpful. I also try and help them when i can no matter what.
We all suffer in silence and do our best.., all the best to you all. That includes you Sylvia and that they find something to alliviate some if not all your pain.
I hope 2014 is a better place for you this year has been so hard for you. thank you for sharing, here's to a happier healithier new year to you & to us all. love Alison x
Aw Sylvi, just think those sort of people shouldn't even be given the time of day. It's good that they are in the minority. You always seem so light hearted through your suffering and just think how much you help others on Health Unlocked, with your terrific sense of humour too.
Why thank you Bencar,that is lovely of you to say so. I do try to keep my sense of humour, though these last few months they have been sadly missing, but i think it is coming back now i am not in so much pain as i was before xmsa.xxxx
Here's hoping that you my friend have a much better2014 then this last year. I wish better health for all fellow sufferers. Love and best wishes Christine xxx
I know just how you feel. I dn't go out when people can see i am not well, I am a private person, I don't like to make a fuss. I was diagnosed aged 25 in 1997 i had 2 small babies it was difficult but i am so proud of myself for getting through that part of my life without putting on anyone but it has taken its toll on my mental health as i now have bad depression partly to do with my Ra not responding to the treatment and partly because i should have asked for help but didnt. When someone says something to me that i shouldnt park somewhere it really does upset me.x
Hi Sylvia, thanks for sharing your story, wish I could wave a magic wand and make it all disappear! Wishing you and everybody a healthy happy 2014.....lets hope that the public awareness for RA continues to grow so that there is more understanding & compassion for us the sufferers. Big hugs xxx
You are a brick, Sylvie, maybe you don't realize that! You survived, that is the important thing. I remember all those times you mention. Really, we are all survivors here, aren't we? Thankfully we have each other and HU to hold us all together.xxx
Let us not forget the good times, and build on them, for more Good Times! Starting soon! Nothing was more therapeutic than the Porch Parties, and the feelings of being so close to each other, just by imaginings! And the Strickly..contests, that promoted and allowed our inner-self imaginings, allowed us for only moments, to be and do what we would never have any other way!! oh and the humour! There is real talent among us!! So, for 2014, may it continue and build!!!
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
or even less pain !!
A growth on my thumb???
Autoimmune diseases are like buses!
A very confusing appt
First and with a bit of luck my last blog - 50/50!
