So Long story short the rheumatologist finally called me back after 3 weeks and among other things told me that my lip biopsy was non diagnostic and I didn't have sjogerns. I go back to the maxillofacial surgeon today who did it and he says well there were very low levels so you may have it this is not the only test and all your symptoms point to it and prescribed eye stuff. I really wish they would get their stories straight and now I still have 2 1/2 months to wait to find out what the bleep is going on. Oh and the rheumatologist also told me they are 'scared' to put me on any treatment what so ever because of my adverse reactions. well gee thanks guys I really enjoy being in so much pain I just want to give up and being so fatigued I can't cope any more! sorry rant over
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