Thin wrists again: First injection of Simponi last... - NRAS

NRAS

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Thin wrists again

20 Replies

First injection of Simponi last Monday and today my wrists are back to their normal size! So excited and so pleased. Finally something is working against RA

Gentle hugs to all of you

Xxx

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20 Replies
sylvi profile image
sylvi

Pleased for you Katie.xxx

in reply to sylvi

It will happen soon for you Sylvi

Love and hugs

Xx

claireyj profile image
claireyj

Sylvi I really hope this is the sort of blog we are going to hear from you really soon :)) ..and Katie that's great news enjoy it :)) Claire x

Thank you Claire- I am conscious that so many are still trying to find that precious result and that this may not always be, for the moment am smiling

Hugs

Katie

miss profile image
miss

Very pleased to hear its working xx

in reply to miss

Me too x

_andy_ profile image
_andy_

good news katie C .. its a good sign , when anti tnf starts working so soon.. x

in reply to _andy_

Just wanted to share to give everyone some good news x

Neonkitty profile image
Neonkitty in reply to _andy_

And a bad sign when they don't? Seriously, if Enbrel works great for three weeks then I flare (in joints which already had damage and flaring before I Started Enbrel a month ago) is this indicative of not going to work I wonder? Who can tell. Have to sit it out a bit longer, till end of three months, but without steroids is hard knowing they could return me to great mobility, but mask the ESR etc. Anyhow, I am deligted for you all who aren't having any blips and long may that continue! ;-) I think I may be a more difficult patient given my joint damage.

Julie

Shell1967 profile image
Shell1967

Brilliant news,well done Katie :)))) xxx

Yay, Simponi = miracle drug :) !!! Really glad it seems to start working for you!! xx

in reply to

I know- was worried for a day or two there but this morning got dressed without even thinking about it, then I realised I had pulled up my trousers using my thumbs, something I have not done in five months! Xx

in reply to

Excellent :) !! So, shall we start that Simponi fan club?? :D xx

in reply to

Oh I totally think so- would be amazing and interesting. I am right behind you girl- lead on McDuff xx

helixhelix profile image
helixhelix

Wow! It's great when you see something working. Sounds like a great drug for you, but could it make the sun come out as well? Polly

Polly, will have the conversation xxx

Neonkitty profile image
Neonkitty

So glad to hear that! Great news. Unsure if Enbrel will be right for me but only had four. As I said, two days after the first shot things really happened fast then all very good indeed for three weeks then I flared in my worst areas. We shall see. As my fingers are stiff/huge I shall have to make visits here to type much less, but wishing you all well, of course.

Julie xx

in reply to Neonkitty

Hi July, I am sorry I did not reply to your previous comment . I think we all live with the knowledge that there is a possibility that the RA will flare and nothing will be able to prevent that- sadly that is the reality for all of us. I hope that your flare is short lived. My fingers and hands were the first place I noticed my RA and it is lovely sitting here tonight looking at my much improved hands so I send quiet hugs to you and hope your flare is soon under control.

I know what you mean about typing- I was fortunate enough to get an IPad from work, it requires no pressure to type, simply touch my finger tips on the keyboard and really I simply now could not do without it especially as I still do not have full movement of the joints, not that that is a complaint, way too early for that level of improvement

I sure appreciate your replies especially since it is currently so horrible for you

Hugs

Katie

Neonkitty profile image
Neonkitty

I am so delighted it is working for you, Katie! I think I had been left too long waiting to start the Enbrel and I could feel and see the joints going gaga. At least I know why, I guess. it os going other things, definitely, but it needs to do more! Love to you.

Julie xx

Neonkitty profile image
Neonkitty

Sorry, it is still doing other things!

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