I have quite a few joints now that have either self-fused or are damaged in some way from when my RA was not well managed - ie I can't write with a pen for a long periods of time or easily get up and down onto the floor or lean because my right wrist is fused and my left wrist is also partially fused, I have swan neck fingers and damaged knees with limited bend. My right foot limps and I am putting off a foot & ankle fusion. I sound ancient but I am 41 with 7-yr old twins!
My RA is now well-managed but I seemed to have a lot of damage very quickly before it was stabilized and bits of this old damage (now secondary osteoarthritis) keep creeping up on me where the joint is extremely painful then tries to fuse itself but fails because I move it and then is extremely painful etc etc.
My consultant is lovely and really helpful with medication/chasing x-ray appointments etc but even he doesn't have any magic way of mending what has already happened. He just says I will need to have various levels of surgery as and when. I find it all quite depressing.
How do you all manage??!