Cor i hurt tonight....: Hi everyone....i survived my... - NRAS

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Cor i hurt tonight....

Lisashoemad profile image
6 Replies

Hi everyone....i survived my 1st dose of MTX last saturday....im on 15mg... Felt erm iffy on sunday but weather was so gawjus i plodded on through it....last couple of days ive been looking after my 6 month old grandaughter as my daughter has returned to work.....im having her 3 days a week....WOW i had forgotten how much hard work it is...my own youngest is 8 but quite self sufficient......lol... Id forgotten how hard it is putting babies in and out of carseats...setting up and taking down the pram......im hurting bad tonight.....OH just gone to work....and daughter is floating round like a fairy wired up to the electricity...lol...and it all starts over agen tomorro....what have i agreed to ? Im hoping she will help me get fitter, and keep me positive.......hope everyone is okish....x

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Lisashoemad
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LavendarLady profile image
LavendarLady

Well done you. The MTX will help - don't forget the painkillers as well.

Yes it is very hard work with a young child - when my granddaughter was small, it used to wear me out after just a few hours.

Could your daughter arrange for someone else to have her for a day or so to give you a break. Does your daughter understand about RA and the effect it has?

I had to get my hubby to lift ours in and out of the car and put up the pram as it was so difficult with wonky hands.

When your granddaughter has her nap, put your feet up and rest as well.

I know we all like to help our own offspring with their child care but someone with RA is in a different position to someone without it who is fit and healthy.

Hope you will feel better tomorrow after a good night's rest.

LavendarLady x

I can understand your pain so well!

I've just started on MTX but only 5mgs although today I went up to 7.5mgs.

I also look after my grandchildren 1 day a week & that is more than enough for me. I love doing it but it is very tiring!!!! They are 4 & 2 1/2 & very active!

i really hurt today having had them yesterday, I'm sorer than I normally am & that's with some good weather!

Try & pace yourself, take pain relief & frequent sit downs!

Good luck Pauline x

Well done, try and get some rest between childminding

allanah profile image
allanah

Hi Lisa, love Superted!!

You have brought up one of my worst worries here. My boys in the next few years I suspect may start a family. I worry so much that because all they have seen for the past few years is me sick, not walking well, that they and their lovely girls will not trust me with their children, I am crying at the thought of it now.

I just hoping that the drugs will have restored me to some sort of normality by then though as my Humira I think is having some but slow progress. I have awful thoughts of looking after the grandchildren and not being able to play with them.

So actually, this will sound daft to you as my scenario in my head hasn't even happened yet,! But I am jealous that they trusted you three days a week. I know you will be sore and tired though and maybe it is too much , but I think everyone who just starts looking after children are exhausted!!!! Good luck and enjoy but if it gets too much you will have to tell them, and don't forget the painkillers. Xxxx

Lisashoemad profile image
Lisashoemad

Thanx ladies....yeah its a tough one Allanah...my pain meds will be getting a battering i think...and inbetween this ive had an MRI for my back and now have to fit in a steroid injection.....i hear what you are saying Allanah and im praying yr meds are in full swing and making yr life more comfortable and pain free b4 yr grand blessings make an appearance....im honoured im trusted to look after my grandaughter, but also dont think my daughter appreciates how low this illness can make me....i havnt wanted togo on about it too much.....my 8 yr old is quite understanding...but again i dont want her burdened by it so i struggle on..... Hope you all have a nice day...x x x

allanah profile image
allanah in reply toLisashoemad

Hope the MRI is helpful, mine showed disc and nerve damage, had the neuro op in December and it has really helped thankfully.

Yes it's hard when u don't want to tell them how tired you really are and want to keep trying, but maybe it is time for a chat to reduce the hours? What do you think? Xx

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