Hard day! I know you understand! : Hey I have been... - NRAS

NRAS

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Hard day! I know you understand!

Phoo2 profile image
15 Replies

Hey I have been doing so much better on steroids and cbd oil . But had a flare up Monday night. Today was just a struggle from start to finish . Still can’t move my right arm and shoulder , even writing hurts!!!!

Kinda talked to my partner, my boss, my daughter and not that I need to moan but I need someone to understand how incredibly hard today was for me!!!! So I have shared as I know u understand . How u all doing today?? Hope your day was better than mine! 💕

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Phoo2 profile image
Phoo2
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15 Replies
Moomin8 profile image
Moomin8

I feel for you x

Vonnie10 profile image
Vonnie10

I get you it's hard it's gets you down we have all been there when it flares up you just think I want my old self pain.

allanah profile image
allanah

Drives you mad doesn't it. Glad you are talking to folks. I really find it helps x

Sweetheart0377 profile image
Sweetheart0377

Feel for you too xx

Nicole2000 profile image
Nicole2000

Hello Phoo2,

SNAP!

I've had my pregablin increased by my GP this week as I am constantly having back spasms. This drug has been known to make me feel very lightheaded at times. So it has been an experience today trying to cope with work and the side effects of my increased meds. Here's a snap shot of my day while not feeling on top form.

Arrived at work 7:30. Could hardly use my hands as they froze up over night. I kept calm and carried on with the day. Finished at 5:30, rushed to the supermarket to get the ingredients for our dinner, both knees aching, not sure if I could push the trolley around the shop. Bought food and dumped it all in the car. Got in, quick change of clothes (jogging bottoms and t-shirt), made dinner, cleared up, got my girls sorted for bed, showered, in my PJs, took night meds and now sitting on the sofa - joints throughout my body are throbbing and my back is in another spasm. I'll be in bed in the next 30 mins. I need to get enough sleep to get me through tomorrow.

I know how you feel 😞

Take care, I hope you feel better soon.

N x

Eiram50 profile image
Eiram50

Really sorry to hear your days been so difficult. Praying that tomorrow will be so much better for you

Marie

Phoo2 profile image
Phoo2 in reply to Eiram50

Good grief life is hard sometimes isn’t it??!!!! Xxx

Eiram50 profile image
Eiram50 in reply to Phoo2

Bloody well can be

keeta profile image
keeta

Oh bless you .i.m so sorry you are struggling .my heart goes out to you.rest keep your strength.make an app to see your doc .maybe you need a steroid injection x

Nettac profile image
Nettac

I feel for all those in pain. It's grim. Wishing some relief very soon.

Mhairi54 profile image
Mhairi54

Sounds awful. Hope you're feeling a bit better today. x

Ruth12345 profile image
Ruth12345

Yep. I understand.

Rest well

maccnc profile image
maccnc

I do empathize for your pain and am sorry you are having such a rough time.

Also noted you use cbd oil. Do u find it helps pain much and how do u use it- rub on or by mouth?

Hope 🙏 u are better by time u read this.

Matilda7 profile image
Matilda7

And which brand of CBD oil do you use?

Phoo2 profile image
Phoo2 in reply to Matilda7

Thanks u guys . I use red oil from cbd brothers - about 5 drops morning and night . More if I need it. I also started vaping pure cbd Crystal which has helped. Today at work I felt absolutely dreadful , weak, anxious , stressed , head fog , generally shaky on steroids.... terrified that work would see I was a mess!!!

I took a few vapes of cbd Crystal and felt so much better. Focused and better sense of well-being . Still left work early but definitely more productive. Considering I was in tears last night and going to take the day off, I think I did well.

Hope u guys are having a good day and please let us know if cbd helps you! Xx

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