Having had RA for 16yrs I don't really no where to begin but I'll try my best to share my good and bad times with you all.
Having tried to conceive for 10yrs and going through a failed ivf I then had 2 miscarriages and an ectopic pregnancy. I then got pregnant again but at the same time was having symptoms of RA, just stiffness in the fingers but as you all know that's painful enough. However I wasn't diagnosed with the illness until 12 mths later being pregnant made it difficult to diagnose, they were convinced at first it was Lupus. i didn't really help myself as i refused to take any pain relief or steroids because of the baby so suffer I did.
I eventually gave birth to a healthy baby boy in March 1995, I remember thinking no more hospital treatments,needles,blood tests and all those things we go through but little did I know it was only just beginning.
The baby I had waited so long for I just wanted to hold and be a mum to,not much to ask you would think. But it was almost impossible my hands arms and everywhere just hurt so much that I couldn't even pick him up I felt robbed by the disease. Even holding his bottles.fastening his baby grow I just could not do, why? what was happening to me.
Just writing this as bought back the tears that I thought I had shed for the last time I spoke about this but it still hurts,why?
I spent the next year in and out of hospital and eventually was diagnosed with RA and put on sulphasalazine but it was useless. The thing is with these drugs is that you have to wait 3 mths for them to work before you can try something else.
This is how my life as been for the past 16yrs just trying new drugs because other have failed or just don't work, and now after 11 operations and endless times in hospital (I'll tell you more another time) am on Rituximab, MTX and others which seems to suit, doesn't totally control the disease but that's ok with the help of my husband and son and some other members of the family and of course a good rheumatologist and fantastic nurses I know I will somehow be ok.
I'm also hoping that by talking to other like yourselves will help me deal with the past and I hope I will be of help too.
I hope I will be able to share more with you soon but it still hurts so much to write or think about it,so for now that's about it. xxx