He was at 40 % for ages and was told do not worry as long as it does not get worse we will monitor it and if it does we will see you again (this is the family GP) bout 2 years ago he was admitted to hospital with a very high blood pressure and about the same time his diabetes meds stopped working. took the GP a year to get him to refer us to the hospital and for a year now he has been on insulin with goo control. then this year his function dropped to 23 % and the GP said its time to see the hospital renal team but the time we got to hem he dropped to 18% and has been for 4 weeks.
more meds and a restrictive diet later we are living between 4 weekly appointments and blood tests.
I have been looking for forums and support groups so if any one knows any would be great for a link. also we are looking at the nightmare of asking for PIP as he can barely walk 40 yards without sitting down and I have to take him to and from work and to appointments. has anyone with ckd stage 4 got pip and how did you go about it. it seems to be a minefield
thanks for any info help tips and directions to otehr people