Posts - Parents of Children with Kidney Disease | HealthUnlocked

Parents of Children with Kidney Disease

1,082 members•230 posts

All posts for October 2018

What has your experience with the healthcare system been like?

Happy Halloween to you all! Today, our question is about how you and your child have experienced healthcare systems. Is there generally a good understanding of...

Happy Halloween to you all! Today, our question is about how you and your child ...

•6 years ago

How do you make sure that you balance your own personal life with parenting?

My husband and I try very hard to have some time to ourselves. We try to do a dinner together a few times a month. When our children are in school we have...

My husband and I try very hard to have some time to ourselves. We try to do a di...

•6 years ago

What’s the impact been on the rest of your family?

Today we'd like to hear how kidney disease has impacted the rest of your family. Has there been an impact on other siblings? Partners? Parents? Tell us about...

Today we'd like to hear how kidney disease has impacted the rest of your family....

•6 years ago

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Making time

Making time for me has been very difficult these days but I do try to schedule in workouts and in the evening when everyone’s asleep I take some time to...

Making time for me has been very difficult these days but I do try to schedule i...

•6 years ago

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Making Time for Myself

Remembering to make time for myself has been the hardest part as a parent, in general. It's easy to get caught up in the day to day responsibilities as a...

Remembering to make time for myself has been the hardest part as a parent, in ge...

•6 years ago

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How does kidney disease affect your child’s day-to-day life?

Happy Monday! Hope everyone had a lovely, lovely weekend. Today we ant to know what activities does kidney disease affect the most? What things does your...

Happy Monday! Hope everyone had a lovely, lovely weekend. Today we ant to know ...

•6 years ago

Other diagnoses

Do your kids have learning disabilities or other mental health diagnoses? My daughter has ADHD and a math learning disability and sometimes I think the kidney...

Do your kids have learning disabilities or other mental health diagnoses? My dau...

NKF Ambassador•6 years ago

Help!

Were their any questions posted yesterday or today that I missed?

Were their any questions posted yesterday or today that I missed?

•6 years ago

Balancing personal life ...

My son was diagnosed at 16 years old, so he was already pretty independent- he's a senior in HS now and has a part time job, so he's out alot. My husband and...

My son was diagnosed at 16 years old, so he was already pretty independent- he's...

•6 years ago

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Balancing Life

My son's experience with kidney disease is lifelong, therefore, we have adopted this as part of our lives and my husband's family is good about helping pick up...

My son's experience with kidney disease is lifelong, therefore, we have adopted ...

•6 years ago

What do you know now, that you wish you had been told when your child was first diagnosed?

What general advice would you give a parent whose child is newly diagnosed with kidney disease? What advice do you think your child would give to a recently...

What general advice would you give a parent whose child is newly diagnosed with ...

•6 years ago

Treatments - Best & Worst?

Today's question is about treatments! What are the best things about your child's current medications? What are the worst things about their current...

Today's question is about treatments! What are the best things about your child'...

•6 years ago

When your child was first diagnosed, what was your doctor's initial advice?

Today's question is about the first conversation with your doctor after your child's diagnosis. When your child was first diagnosed, what was your doctor's...

Today's question is about the first conversation with your doctor after your chi...

•6 years ago

How long has your child been diagnosed with kidney disease?

Hi all, this is the first post in our 2 week question series! We're interested in knowing when your child was first diagnosed with kidney disease. How long has...

Hi all, this is the first post in our 2 week question series! We're interested i...

•6 years ago

Making the case for a comprehensive national registry for pediatric CKD

Making the case for a comprehensive national registry for pediatric CKD...

Making the case for a comprehensive national registry for pediatric CKD...

•6 years ago

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Child with Kidney Cancer Raises Money for Sick Children

Child who beat cancer raises money, gives up presents for kids with illnesses...

Child who beat cancer raises money, gives up presents for kids with illnesses...

•6 years ago

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Mom's Plea

Mum's plea to find cure for rare disease that makes daughter look like 'she’s been punched repeatedly'...

Mum's plea to find cure for rare disease that makes daughter look like 'she’s be...

•6 years ago

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Girl Saves Boy's Life

Girl who died when 4×4 wheel fell off and crashed into her saves boy’s life Read more:...

Girl who died when 4×4 wheel fell off and crashed into her saves boy’s life Rea...

•6 years ago

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Son with renal vasculitis

Good morning, I'm happy to talk with parents who can understand what it means to have a child with kidney problems. My son, who is now 13 years old, was...

Good morning, I'm happy to talk with parents who can understand what it means to...

•6 years ago

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New to the group!

Hi there, very excited to be a part of this group. My son was diagnosed with Dents Disease which is a CKD and very rare. Approximately 250 families diagnosed...

Hi there, very excited to be a part of this group. My son was diagnosed with Den...

•6 years ago

Catheter

Does anyone have to catheter their child 4 times a day to drain the bladder? My sons urologist is wanting us to do this and I don’t want to torture my 2yr old...

Does anyone have to catheter their child 4 times a day to drain the bladder? My ...

•6 years ago

Legislators recommend more pediatric ESRD research on cost of transplant drug costs

https://www.healio.com/nephrology/policy-and-politics/news/online/%7B16417fd3-a023-49d8-af2b-707b41504ce0%7D/legislators-recommend-more-pediatric-esrd-research-

https://www.healio.com/nephrology/policy-and-politics/news/online/%7B16417fd3-a0...

•6 years ago

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