Son with renal vasculitis

[Wizzi]

Good morning, I'm happy to talk with parents who can understand what it means to have a child with kidney problems. My son, who is now 13 years old, was diagnosed with an associated Anca vasculitis (MPA) with severe renal involvement in March 2017 who left him - after heavy treatments and complications - with third-degree renal disease. Today he is fine and the renal function is stable. The disease is in remission but he has to have frequent checks. I wonder? Will the kidney disease necessarily progress if the basic disease is in remission? What can we do to slow down this possible progression?

Is there someone with a son or doughter with a similar rare illness?

Hope to hear about you soon

have e good day

cinzia (I'm from Italy)