Posts - Parents of Children with Kidney Disease | HealthUnlocked

Parents of Children with Kidney Disease

903 members • 211 posts

All posts for November 2018

Son

My son has IGA. He went into a treatment of dialysis and chemo for 6 months. It did not work. Now, he is on the waiting list for a new kidney. His father and I...

My son has IGA. He went into a treatment of dialysis and chemo for 6 months. It ...

bailar5

•5 years ago

3 Replies

Why I advocate for Pediatric Kidney Patients

People ask me all the time, what is my motivation to advocate for Pediatric Kidney Patients? This lady in the photograph is. Her name was Maureen O'Brien....

People ask me all the time, what is my motivation to advocate for Pediatric Kidn...

kidneystories

•5 years ago

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GRANDMOTHER OF CHILD

I am actually a grandmother of a child born with Renal Failure and who eventually had a transplant at age 1.5 yrs old. He is now a kindergartener. I'm also a...

I am actually a grandmother of a child born with Renal Failure and who eventuall...

Nana1963

•5 years ago

2 Replies

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What I'm learning on this journey...

What I'm learning throughout my son's journey with kidney disease is that we are not alone. It can easily feel like we are, but it's important to connect with...

What I'm learning throughout my son's journey with kidney disease is that we are...

ShareYourSpare

•5 years ago

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Dents Disease

The first helpful tip on managing my son's disease would be knowledge. You have to know what you're working with in order to provide the best care possible....

The first helpful tip on managing my son's disease would be knowledge. You have ...

Samhan

•5 years ago

1 Reply

8 Year Old Girl receives Kidney from Dad

http://www.fox5atlanta.com/news/8-year-old-recovering-after-getting-kidney-from-dad

http://www.fox5atlanta.com/news/8-year-old-recovering-after-getting-kidney-fro...

kidneystories

•5 years ago

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Balsncing personal life

Luckily Right now my daughter is doing pretty well. The only inconvenience is going to her doctor's appointments and getting her blood and urine done. Most...

Luckily Right now my daughter is doing pretty well. The only inconvenience is g...

melissamae_ia

•5 years ago

1 Reply

My Tips

1) I am consistent with her treatment. Always on top of her to make sure she has taken the medicine. She is on an ace inhibitor to help protect the kidneys...

1) I am consistent with her treatment. Always on top of her to make sure she ha...

Pinky4

•5 years ago

1 Reply

Top 3 Tips

My top 3 tips for helping to manage my son’s symptoms and experiences - 1) try to stay calm and keep my son calm when he's sick or experiencing bad side...

My top 3 tips for helping to manage my son’s symptoms and experiences - 1) try t...

Alexsmom

•5 years ago

1 Reply

3 tips for managing my child's symptoms and experiences

At this point, if my child experiences symptoms, it's usually a trip to the ER, so I'll focus on managing his experiences. My child is a 6 year old, he is...

At this point, if my child experiences symptoms, it's usually a trip to the ER, ...

sarahtar

•5 years ago

1 Reply

3 Tips for managing my child’s symptoms and experiences

My 7 year old son is 5 years 4 months post transplant. Here are some tips that help me help him manage his symptoms and experiences. 1) Experiencing routine...

My 7 year old son is 5 years 4 months post transplant. Here are some tips that ...

ShareYourSpare

•5 years ago

1 Reply

3 Tips

Some are more practical than expected but.. #1: Keep a daily journal. This includes not only weight and measured levels, but food&fluid intake as well as...

Some are more practical than expected but.. #1: Keep a daily journal. This inc...

JaMoMom

•5 years ago

1 Reply

tips

Be patient with your child and what they are going through. Always seek second, third even a fourth opinion. And don't take any decisions about your child's...

Be patient with your child and what they are going through. Always seek second, ...

bugaman

•5 years ago

1 Reply

Tips

She needs Extra rest and to not push herself too hard. Follow the doctors orders and take the meds suggested but also know the side effects and trust your gut...

She needs Extra rest and to not push herself too hard. Follow the doctors orders...

melissamae_ia

•5 years ago

1 Reply

Managing Symptoms and Experiences

My son's most common complaint is that his stomach hurts. He is on many medications and supplements so this is to be expected. I usually offer him rest and...

My son's most common complaint is that his stomach hurts. He is on many medicat...

ljackson

•5 years ago

1 Reply

Time for myself

At first time for myself was a dream, but now that we have a better understanding of Nephrotic Syndrome and close friends and family who understand his needs,...

At first time for myself was a dream, but now that we have a better understandin...

MCMom

•5 years ago

1 Reply

How do you feel about new treatments and clinical trials?

Are you aware of any new treatments being researched? How do you feel about participating in clinical trials? What would prevent you from involving your child...

Are you aware of any new treatments being researched? How do you feel about part...

Vesa

•5 years ago

12 Replies

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Check out our Kidney Disease Education courses on the Kidney...

Check out the new After Transplant program on the Kidney Lea...

New to the Kidney Learning Center: Becoming a Living Donor!

New in the Kidney Learning Center!

Explore NKF’s Kidney Learning Center!

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Posts - Parents of Children with Kidney Disease | HealthUnlocked

Parents of Children with Kidney Disease

All posts for November 2018

Son

Why I advocate for Pediatric Kidney Patients

GRANDMOTHER OF CHILD

What I'm learning on this journey...

Dents Disease

8 Year Old Girl receives Kidney from Dad

Balsncing personal life

My Tips

Top 3 Tips

3 tips for managing my child's symptoms and experiences

3 Tips for managing my child’s symptoms and experiences

3 Tips

tips

Tips

Managing Symptoms and Experiences

Time for myself

How do you feel about new treatments and clinical trials?

Search posts

Pinned Posts

Topics

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