Major hair loss: I too am having major... - Kidney Transplant

Kidney Transplant

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Major hair loss

Moe37 profile image
14 Replies

I too am having major hair loss after receiving a kidney /pancreas transplant. its super depressing and I am having a major breakdown over it. currently am using biotin 5000 milligrams. Hoping it helps!

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Moe37 profile image
Moe37
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14 Replies
PostivelyJo profile image
PostivelyJo

Yep..... like a lot of people on here. My experience was of major loss at around 6 months. It’s returned but it’s different. I have to be honest I struggle lo s massively with it . I just don’t feel me anymore ... that said being in lockdown, not going out and life being rather odd we are all feeling strange.Try The Peptide Hair Serum by The Ordinairy Co....

it will get better and obviously there are worse things that can happen than having bad hair...

Slow adjustment to all the changes and try not to focus on it too much .

Moe37 profile image
Moe37 in reply to PostivelyJo

I appreciate the positive feedback, happy to know I’m not alone .

Ynnep profile image
Ynnep

Hi Moe37,

I'm so sorry this is happening to you. I know how you feel. I'm hoping that one I get the covid vaccination, I can finally go to the salon and see if my stylist can help me.

Moe37 profile image
Moe37 in reply to Ynnep

I’ve been going to the salon but it’s definitely the medication. I suggest going to a dermatologist. I’m gonna go this week. Praying for the best for all of us . It’s just hair but sheesh lol.

Ynnep profile image
Ynnep in reply to Moe37

Hi Moe37

You're correct, it is just hair but with all the negativity in the world and feeling like c*** most of the time, it sure would be nice to have my "pre-surgery" hair back. I look at pictures from before and I want to cry.

WYOAnne profile image
WYOAnneNKF Ambassador

Not sure how far out from a transplant you are, but unfortunately hair loss is a pretty common side effect. I take Neoral (cyclosporine) and Myfortic (cellcept). I started losing hair at about 6-8 months out, and by a year and a half mine started to come back. What was weird, my hair came back curly. No problems for me since.

Moe37 profile image
Moe37 in reply to WYOAnne

Praying for some type of outcome but I willBe patient, thank you. I’m in my second year as of next month

I had hair loss. Only on my head. I have heard of hair loss on legs. This was early on and then it grew back. Then, the Imuran took a toll on my hair. When I was switched to mycophenolate my hair grew back better then before it fell out the first time. Basically, it should grow back. I've never heard of it not growing back.

Moe37 profile image
Moe37 in reply to

Hoping mine comes back as well

nosillap profile image
nosillap

Am 6 years post transplant & been through all the hair loss & emotions. Am now wearing wigs &,enjoying every minute. In fact, I've become a wigaholic!! Embracing the change & loving it!! Give it a try!! Lots of friends & support!!

Moe37 profile image
Moe37 in reply to nosillap

Thank you so much ! I pray it does too

Moe37 profile image
Moe37

I do too, I was wearing them before transplant because I wanted to not because I had to lolll

Charly1429 profile image
Charly1429

I too was experiencing slight hair loss after transplant. I started taking 10mg Biotin every morning and using Biotin shampoo and conditioner and in 3 months I noticed a big difference, my hair is getting thicker and getting back to the way it used to be.

Moe37 profile image
Moe37 in reply to Charly1429

Perfect ! I will try that as well, I’m losing my mind lol

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