I was taken off Calcitriol months ago and found the old meds when I was cleaning out my trial and error meds box. I started squeezing a capsule in with my regular generic shampoo. I noticed my hair started growing faster and little sprouts where new hair is growing in. It took about a month. I am very excited and hope this helps everyone with this issue. Also, yesterday was my 39th Kidney Transplant Anniversary. I ate two Zero bars.
Hair Loss & Anniversary.: I was taken off... - Kidney Transplant
Hair Loss & Anniversary.
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29 Replies
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39 years!! Congratulations!!! Did you have a live donor or a cadaver Kidney! That is amazing!!
in reply to Cookup60
Thank you. I had a living donor.
What made you put Calcitriol in your shampoo? Is it a known side effect?
I don't like to waste anything. Several of my trial and error medications have ended up back at the pharmacy for disposal. I like to experiment with anything that can possibly help my hair. It is a vitamin D analog. Vitamin D helps hair. I asked nephrology about it and they told me it is probably active/inactive ingredients in the medication. That is possible. They did acknowledge the regrowth. I don't have many left and obviously not going to refill it so I can stick it in my shampoo. It is going to be a short experiment. I will send a picture when I am finished.
LisaSnow in reply to
In animal studies where scientists modeled hair loss from chemotherapy, they did find data that suggest a potential benefit of calcitrial on hair(fur) regrowth.
LisaSnow in reply to
Have you been on the same transplant organ for 39 years? Do you still have to take medications that affect your hair?
in reply to LisaSnow
Yes. The same one. My hair has taken a hit. It falls out and becomes very thin and then grows back and then repeats.
LisaSnow in reply to
I remember you said you are taking 2.5mg Prednisone every other day and one 250mg cellcept ? Neither of your medications especially at that low dose should be causing the hair fallout. Have you had your hormones checked?
in reply to LisaSnow
Yes. Hormones, thyroid and tests for vitamin deficiency. All normal. I did experiment with B12 shots at the PCP's office. No difference in hair or energy levels. Imuran was rough on my hair. Then I was switched to Mycophenolate for a different reason then hair. It did get somewhat better. After the transplant it practically all fell out. Then grew in better then it was. Currently, it gets worse and never really came back the way it was originally. I found more in the meds closet. Interesting, because I take Pericalcitriol a generic version for Zemplar for an elevated PTH level. I think it is some of the meds I take. I have some idea, but am not really sure.
LisaSnow in reply to
Be careful and let your doctor know before you try anything. Transdermal application gets the active compounds absorbed in your system and you want to avoid harmful drug by drug interactions.
in reply to LisaSnow
I know. They are a bit perplexed by some of the stuff I come up with.
LavenderRabbit in reply to
Wow! I would like to see the pictures. Thanks.
in reply to LavenderRabbit
I decided I am going to have it colored and have some blue in it while it is healthy. Then, I can check that off the list.
LavenderRabbit in reply to
I admire you for having the gusto for going blue. I was only planning to knit a hat that looked like dreadlocks with blue or lavender yarn!
in reply to LavenderRabbit
Wow. You are talented. Hair is really a sore subject with nephrology. They hear complaints all the time. I get it. However, I want the transplant to work and at the same time, don't want any adverse reactions. I want my kidney and my hair too!
LavenderRabbit in reply to
Amen to that!
I don’t think hair is to much to ask for. Everyone has it.
in reply to LavenderRabbit
I agree!
LisaSnow in reply to
I am happy with my hair right now but if it falls again in the future, I would invest in expensive and beautiful wigs.
Congratulations on 39 years. Yesterday was my 27th.
Congratulations! What anti-rejection medication, if any, do you still take this far out?
Thank you, Lisa. I take Gengraf, which is cyclosporine, Mycophenolate and Prednisone. I had a 6 Antiguan match with a deceased donor.
in reply to anne627
Thank you and great news for you too.
Thanks!
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