Kidney Dialysis
747 members254 posts

Feeling likr dialysis is making me worse

Hi,

I have recently started dialysis, and have done 2 treatments. My last treatment couldn't be done because they couldn't het the needle in my vein and ended up sticking me 3 Times, and sentme home without treatment.

I'm having a hard time coping with dialysis. I like to stay active but it seems like dialysis had made me worse. I thought I was supposed to feel better after starting treatment, but just the opposite. I'm also a type 1diabetic. Any information similiar experiences would be appreciated.

10 Replies
oldestnewest

Jimmy you will feel better once your program gets into full swing. It's too young yet to formulate an opinion due to the lack of many treatments. Go back to dialysis , work with your tech who isn't there to inflict misery on you and write us a report back after a 30 day run of this. I noticed my energy level getting better after about 3 week on it. I too had 3 needles applied now and then but eventually it got better. GIve it time to work. Then judge it. Your weight will moderate if you follow diet restrictions and if you have any leg or arm swellings, I bet they too will go down. It does get better with time.

2 likes
Reply

I agree with Grey dog. With any new treatment, you need to communicate with your doctor and dialysis nurse as to how you are feeling as it is all a process.

Stay strong and know that we are all here for you..

Reply

Hi Jimmy. I've been on dialysis over a year now and I have experienced the same thing with multiple needles at times. Try to calmly work with your tech or nurse to discover the best methods with you. With me it was having the tourniquet pretty tight so it would hold the fistula still (I have rolly veins). Take some deep breaths and let it out when they put the needle in. I also use a numbing cream an hour before my treatment so I don't feel the needles going in. As for after effects of dialysis, please give it time. You will naturally feel tired after treatments because the dializer is doing the work your kidneys do 24 hours a day in just a few hours. Work with your kidney and diabetes doctors to get the optimal treatments for you. They're probably starting dialysis by just cleaning your blood and not pulling any excess fluid off at first. Eventually they will do that and I bet you'll start feeling better on the day after your treatment. Good luck and hang in there!

Reply

Yes it takes time to get everything flowing, use emla cream to adjust to the needles,it may take a few weeks to feel better it takes time for the treatment and adjustment to work well I had problems throwing up and now I can snack, and feel fine also with cramping and had my fistula worked on again and is a graft so their may be more changes at first but think of each day you are giving and the things you still want to do.

Reply

I'm 92 and have been on dialysis for 10 years. Since you are new things will stabilize. My fistula has worked well the whole time but I do have it checked every six months. I'm getting an 83% reading on how dialysis is working so you just need to get stabilized and keep your chin up.

1 like
Reply

Beginning treatments as an in-center patient will take time to neutralize. I always tell newbies to give it about 3 months to settle into the schedule and allow your body to be accustomed to the treatments. Dialysis is tough, so it will take time to get tougher and adjust to this new and demanding life. I've been on dialysis almost 16 years, so it is doable, but it is also like riding a roller coaster. You will have great highs and lows along this journey. Take them as they come and try to prepare in any ways you can. Dialysis is not an exact science and needs to be individualized for each person. Be strong wherever possible and allow yourself time to grieve for the "normal type" life you used to have. Things will get better. Have you tried the educational snippets at kidneyschool.org ? They are wonderful tools to help you muddle through all the changes you will be going through. Vent away, ask questions and just talk through your journey. You are not alone. Blessings

2 likes
Reply

Relax and give it time. Dialysis is not magic but it does clean the blood. It took 4 treatments for me to feel better and 6 months to get my fistula prepared for home hemo. Give it time and be patient

1 like
Reply

I actually could not do hemodialysis I ended up in ER almost after every treatment I was never able to finish a 3 hr treatment my blood pressure would go up I would vomit I would shake uncontrollably and part reason was I still urinated a lot but dr did not believe me so they always tried pulling off fluid that I just didn't have ! I finally found a dr who listened and we decided PD would be better been on PD for over a year and for me it works so much better I didn't have problems with the needles but that's because I had a port in my chest

2 likes
Reply

Hi Jimmy 20188 I'm MJ 1965 I am a type 1 diabetic and on PD dialysis for 6 months now. I was frightened about going on it at first but it turns out it wasn't as bad as I first thought. I do it through the night so you're free to do what you need to during the day. It may be worth your while to talk to your care team to find out if you can try PD dialysis. Take care

Reply

Hi Jimmy, I am not diabetic, but I can tell you that I did not feel like I was better with dialysis at first either. But after a couple of weeks I started to feel so much better, so please hang in there, it does get better. I'm so sorry about you bad experience with those needle sticks--hopefully as your access becomes more accustomed to being used that will get better too. It does get easier and usually goes pretty smoothly. Good luck.

Reply

You may also like...