There is hope: I’ve been following this site... - Kidney Disease

Kidney Disease

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There is hope

Bambi44 profile image
12 Replies

I’ve been following this site for a while and wanted to tell you my story to try and give a little light to anyone panicking about egfr.

In 2021 at 43 I had some private bloods taken and my egfr was 73, no panic, as first test and didn’t take much notice.

In 2023 at 44 I had it retested and it was 71. I did a little research and panicked - if I kept on this trajectory by the time I was mid 50’s I’d be in the 60 and could be in real trouble.

I went to see my GP, who was not interested in the slightest and gave no advice about salt, protein, ibuprofen said they wouldn’t worry until it was below 60! Which I thought was too late.

I started following Kidney Solution on Instagram to get some tips about diet and vitamins. I stopped snacking on roasted peanuts/crisps, cut down on salt and cut down on processed meat and alcohol, when I say cut down I would still have it, just be mindful and I’d still splurge on holidays.

I started taking a probiotic, omega 3, bit D and B and alpha lipid acid.

I had my test results yesterday and my egfr at 46 is 91. I was so relieved I could cry. Everything I read told me it wouldn’t get better, the best I’d hoped for was stability.

I wanted to share - I believe this kind of advice should be given by GP’s and it could help others and save the worry and anxiety I know this can cause x

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Bambi44
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12 Replies
Attari11 profile image
Attari11

congratulations Amazing would you please share which omega 3 you been using thanks

Bambi44 profile image
Bambi44 in reply toAttari11

I use Zipvit super strength omega 3 fish oil 2000mg, EPA 660mg and DHA 440 mg

Attari11 profile image
Attari11 in reply toBambi44

Thanks how long you been using do you take medication?

Bambi44 profile image
Bambi44 in reply toAttari11

About 4-6 months

No other meds or issues at the moment

orangecity41 profile image
orangecity41NKF Ambassador

I was put on a CKD diet y my Primary Doctor and it has worked for me. It was based a blood work results for eGFR, sodium, potassium and phosphorus. I have continual blood work following these items.

eGFR68climbing profile image
eGFR68climbing

thanks for your post. I am 59 male and just found out my eGFR of 68 is stage 2 kidney disease from a nurse practitioner that I hired through 10X Health. My primary care doctor never mentioned this ever! After reviewing last 5 years blood labs apparently this should have been mentioned as my eGFR has been under 80 last five years! Your experience gives me hope! I am now following kidneysolution on instagram. Thank you!

Best regards-Bryce

Transalp profile image
Transalp in reply toeGFR68climbing

I’ve been south of 80 for 15 years, still kicking around the 60-70 mark.

Dana66CKD profile image
Dana66CKD

I changed my diet to mostly plant-based, reduced animal protein to fish, egg whites (occasional whole egg) and lean chicken. 3x/week. Reduced processed foods, increased water intake daily to 64-80 oz. Was taking fish oil, but didn't notice improvement & causing mild heartburn.Started at 55 eGFR (stage 3a), with bp rx, diet changes & wt. loss, eGFR's back up to 88-90's.

Struggling with other issues & very sensitive to bp meds. I keep plugging along to try & find right med/dose for spikes in bp.

Glad to hear your good end result. Stay on you diet & lifestyle changes. It will help prolong your kidney & overall health.

Keep us posted.

Bingo88 profile image
Bingo88

WOW That Amazing, and yes you are right doctors don't bother telling you that you have kidney problems until its getting serious and the longer you have had a lifestyle with food. The harder it is can be to alter your eating habits. Thanks for the information..sadly its too late for me and I am awaiting the Fistula procedure to be done. Keep well. Brian

Pepperthedog profile image
Pepperthedog

Research findings and advice on Astragalus are contradictory, so I avoid it. Some sources also say Vit D is potentially a problem, while others (including my renal guy) say it's a good one, along with Vits B & C. Vits A & E, according to most authorities on kidney disease, are definitely to be avoided.

nonna70 profile image
nonna70

My nephrologist explained to me that it was okay for EGFR to go up and down. The problem is if it continues to go down with no upswing.

Merny5 profile image
Merny5

That is wonderful news Bambi! Keep up the hard work and good luck on your journey!

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