IGA Journey

[rere96]

Hi all,

First of all thank you without this place I think I would have constant anxiety on this journey as I navigate the world as a spouse caring for someone with Kidney Disease. My husband has an upcoming doctors appointment in February so as my anxiety rises I come here to seek hope. I think the fear of if something were to be horrible this month is what scares me. Last blood test my husbands GFR was at 42 which is usually the range his GFR has been since starting this journey, It will fluctuate from 38-42, He does spill protein and his creatine is always a bit high. I worry with every blood test that the number might plumate and then what. He told me last time of a medication called i believe Farxgia that they might try for the proteinuria, is this something anyone has tried? If something does get worse on this blood test would this medication still be an option. Are my fears rational, I know my husband has stage 3b right now but the fear of it progressing lingers in my mind, he's only 34 years old what does life look like with this if progressing, Dialysis? Transplant? am I scared for nothing is it a whiles away or around the corner? Again I thank this community for being so helpful and reassuring.

[LanhV]

hi, you should not worry too much. I have had had ckd 3b gfr 30-34 for several years and it has gotten better. I have iga nephropathy for over 6 years and I am now 50. My kidney was normal prior to my diagnosis out of the blue. I have taken farxiga and it does help. I am also taking a lot of new medications such as tarpeyo which is helping as well as filspari. My protein has gone way down to almost normal. Also eating low protein diet and trying to restrict red meats help as well. Stay positive, do blood work every 3 months and keep up the diet and exercise. Listen to your nephrologists and try new medications and fish oil.