Renal biopsy test.

[Ahmad_27]

I was just diagnosed with FSGS and they favored secondary they don’t know the cause because it seemed very old. Anyway igG, IgA, IgM, C3, C1q are all negative. I can show u my test if you’d be willing to help. I’m sharing this because I’m an overthinker I can’t stop thinking about my condition.

[Vivekks]

Ok please share

[Kbressler NKF Peer Mentor NKF Ambassador]

kidneysolutions.org

[WYOAnne NKF Ambassador]

I also was diagnosed with FSGS. That was in 1992. Mine was traced back to a case of strep throat I had when I was 9. 2-3 months later I was in the hospital with nephritis - an inflammation of my kidneys. Doctors said it would reoccur later in life. It was 30 years later when I was diagnosed with CKD.

Back then they didn't know how a change in diet could make a difference and stabilize your eGFR. Learn everything you can about CKD, makes it all less scary. Take a look at the NKF webite kidney.org Also davita.com has a free kidney class on line. Stay hydrated, don't take NSAIDS, and start a kidney friendly diet. See a dietician.

Take care.

[bumblebee_tuna]

FSGS is an umbrella term for a pattern of injury (scarring). Some patients respond to steroids, some are steroid-resistant. Some are genetics and generally progress slowly (my FSGS is genetic), some are due to circulating blood factors and can progress fairly fast.

nephcure.org/ is an organization dedicated to FSGS and other rare kidney disease.

[Rhubarb58]

I am happy to hear that all of those tests came back negative!

[Ahmad_27 in reply to Rhubarb58]

if they are all negative than they rule out any active disease in the blood or in the kidney right?

[Rhubarb58]

It depends on what tests, but usually that means good! Ask your doctor to be sure. Never be afraid to ask your doctor questions!