organplayer

[Haggishead]

i have blood tests every 6 weeks or so and my EFGr is 35 . When i ask about my results it says no treatment required. Im on Rampiril and other meds for AFi heart failure etc but never have had any treatment for CKD. On all my files it says this woman has heart failure with preserved ejection fraction and CKD. Blood test for heart failure Says results below 300 no heart failure above 300 probable heart failure, mine was 1,580 and was suggested i saw cardiologist within 6 weeks , I’ve never seen one , just phone calls!! Do you think it’s because i am 85 years old! (Female)

[Haggishead]

thank you, I was just curious’ !!!!

[gojets]

Most people never reach that stage of dialysis or transplant. Do not let this drive you crazy.

[OldTownhammock in reply to gojets]

thank you.

[orangecity41 NKF Ambassador]

I am a senior age 81 and was diagnosed 5 years ago with ckd 3b. My cause for CKD is partially age related but also due to a medical condition. I am being treated for CKD with a diet, based on bloodwork results, which has helped.

[orangecity41 NKF Ambassador]

Here is a link to information on eGFR . kidney.org/atoz/content/gfr

[Bet117 NKF Ambassador]

Hi Barbara,

Yes, there is no cure for kidney disease, at any age and kidney disease is not exclusive to older people, but with monitoring, correct medication as well as medication dosage, diet based on labs, avoidance of NASID pain relievers, exercise and drinking your water, it can hopefully be controlled with the goal to stop progression.

Other conditions may add to a situation, but dialysis is not the treatment in every case as each is different.

You have our support here at any time.

Our community is filled with wonderful, knowledgeable and compassionate people of all ages who would be happy to chat with you at any time.

Reach out!

Bet

[Bet117 NKF Ambassador]

Dear Barbara,

You are one courageous woman to have gone through so much; continue to fight!

You have a good team behind you as well as a family who loves you. Every day medical science is coming up with new discoveries; in your case, hopefully they will tackle several of the chronic illness that you have been dealing with. I empathize with your feelings and concerns.

Bare in mind that every person is different and responds differently to treatment. With Kidney issues, there is no cure but the goal is to slow or stop progression, which is what I was getting at.

Your case may be totally different than other members of the community and yet similar.

Some on this community and the Dialysis and Transplant Communities have walked in your shoes. It isn't easy.

As far as your job and insurance, I realize that the FMLA goes so far and not every employer is willing to work with you; possibly your doctor's or patient assistance can help you find alternatives.

I don't know where you live, but the Affordable Care Act has provided full coverage health insurance to a friend who was afflicted with terminal breast cancer. So hopefully there is a silver lining in your cloud of that area. It's upsetting and you have my full support. Go to My Hub at the upper left side of this page and click on it. Scroll down and check out the other Health Unlocked Communities, such as Dialysis as members there may be able to share their journeys and offer valuable information and support.

Bad days are part of life. I'm glad that you reached out to us here as you are not alone.

Stay strong and know that thoughts and prayers are with you.

Bet 🙏

[Dana66CKD]

We are all here to listen and support and many with good information. Sorry it's been so tough both emotionally and financially.

Stay safe and hang in there 🙏😥

[JackieJ_NKF Partner]

Hello Barbara,

The NKF also offers additional support resources such as our PEERS Program. It's a peer mentoring program, where individuals are connected via phone with trained mentors who have been there themselves.

Our NKF Cares Team is another great option for support. The Patient Information Help Line, offers support for people affected by kidney disease. It's designed just for patients, family members and care partners. If you'd like to speak with one of our trained specialists, please call: 1-855-653-2273.

While we may not have all of the answers, we do our best to get you in the right direction. I'm definitely wishing you the best.

Jackie J. (NKF Partner)