constant uti

[fartikins]

Hello - has anyone else had a UTI which does not go away.

I have been taking cefalexin 250 one a day for the last six months and it still hasn't cleared up.

They are trying me on another AB not sure which one though.

Getting really scared now.

Visit to doc yesterday. My husband started queuing at 7.15am in the wind and rain for the doors to open at 8am.

Asked receptionist to book him a doctors appointment.

We went to the surgery at 11.15am to find it was for a nurse - my problem needed GP input.

I was so upset I burst into tears at the surgery.

One and a half hours later I was still waiting for an answer.

Our health system is a disgrace and not fit for purpose and all the ambulance and paramedics are out on strike today with the army covering emergencies.

I hate this country.

[Hidden]

I previously posted this in another discussion:

I've had years of incredible bladder pain & urine tests showing blood.

After years of drs, Hospital Emergency rooms and specialists, I was finally diagnosed with Interstitial Cystitis and put on permanent antibiotics. (Despite not always having any signs of infection.)

For my situation, interstitial cystitis is likely to be an immune response.

The solution for me? Interstitial Cystitis diet. I can't find the original website referred by a past hospital specialist but this one seems close: primehealthdenver.com/inter...

[fartikins in reply to Hidden]

Thanks - that was an interesting read - more antibiotics today.

[Hidden in reply to fartikins]

Nowadays, I never have to take antibiotics -unless I stray off the diet -only once this year.

[Hidden in reply to Hidden]

Good for you!

My workout buddy has it and I know it can be brutal, I am going to pass this info on to her. Thanks for posting!

[Hidden in reply to Hidden]

You're welcome, CKDgurl.

If I can help anyone, absolutely anyone, not go through years of unnecessary pain/drs visitis/hosp EDs, and stupid procedures like bladder distensions and permanent antibiotics that don't do anything but cause issues elsewhere (eg kidneys?), I am pleased. 👍

[Hidden in reply to Hidden]

You may be in luck soon. Red Leaf filed a new drug submission with Health Canada for approval of UROMUNE ( I believe they developed the drug) is a sublingual vax for UTIs.

I am not sure if and where it's available right now, but it's supposed to be THE game changer for people with recurrent or constant UTIs

[Hidden in reply to Hidden]

Would love something so simple for my over-active immune system.

[Hidden in reply to Hidden]

Here's hoping! Happy Holidays Wunderkid!

It would be awesome if there was a simple solution, although having read over your diet, it sounds like you have it under control in a great way. So glad this is working for you, and you are off the antibiotics!

[fartikins in reply to Hidden]

Thank you

[Hidden in reply to Hidden]

Wishing you a Happy Holidays, too, CKDgurl. 😀

[fartikins in reply to Hidden]

Thank you

[Hidden in reply to Hidden]

Just letting you know, CKDgurl, that the link I posted wasn't to my diet -but it's the closest I could get to mine.

Anyway, I'm in the process of uploading the medically prescribed diet under my post/question: Anyone know where a copy of this particular IC diet is online? if you want to have a look.

Trouble is, I cannot upload copies of all the pages at once. So I'm trying to do it a page per day.

[Hidden in reply to Hidden]

I'll watch for it!

[JJ727]

My Mum had the same issue with recurring UTIs. She is 4 years post- kidney transplant. Have they offered you a 'bladder wash' procedure? My Mum did not want this. First she was put on Hipprex 1mg and now is on Cefalexin 250mg once a day which seems to be doing the trick. As she has had no cultures growing from urine samples.

[fartikins in reply to JJ727]

Thank you for your kind reply

[CatOnACloud]

Not the same, but I got a whopper of a six month yeast infection from taking a type of diabetic drug. It was impervious to all otc creams, pills, etc. my gyno had to give me three days of the pill (was it nystatin??) and that worked. Now im not supposed to take any of that class of drugs.

Have they done a culture so they know what type of infection you have? Obviously it isn’t working for you. Definitely should be seeing a urologist. Sorry it’s so tough to get good care!!!

I did have what you describe right before my kidney was removed. No function and the ureter blocked meant urine spilled over causing constant infection but I was pregnant so was told a tube could be put in to drain, or take macrobid daily to keep infection down. Wasn’t fun.

[Darlenia]

I feel for you re the utis. My hubby experienced lots of utis when he was on dialysis and the utis continued after his transplant. Eventually, we discovered that the only "cure" for my hubby was probiotics with cranberry. In retrospect, we think his immune system was compromised by kidney disease, then impacted by dialysis, and finally dealt another blow by the transplant with the immunosuppressants - destroying the normal environment inside the bladder. We also believe that his sugar levels from diabetes (brought back by the transplant) contributed to the situation. We were really surprised that probiotics, and the cranberry in particular, reversed that situation. While this is the case for my hubby, there can be other reasons for utis too. Utis really have a negative affect on one's quality of life. I'm crossing my fingers that you can find the reason and a solution for yours too.

[fartikins in reply to Darlenia]

Thank you for your kind reply.

[RoxanneKidney]

My friend Brenda who is 80s had one thT would not go away and she was hospitalized. She is on an estrogen tab which is inserted . Low dose, but that has cured her. When things start to get dry etc down there. There are more issues.

[fartikins in reply to RoxanneKidney]

Thanks for your reply

[fartikins]

I hope so its just the uk is about 2 years behind any other country in the world for bringing new drugs on board. They would rather spend the money on illegals to the tune of five million pounds a day. Just to add my gp surgery has just been voted the worst in the whole county - no wonder I am struggling.

[Hidden in reply to fartikins]

My gosh, fartikins, you poor thing!

Besides everything you're going through, the burdens you carry, and to be cursed with the worst gp surgery -when will it end???

Just remembered something else that may help you through.

It helps me when I'm sliding down (I can't take antidepressants due to them making me worse) and is in addition to the visualisation technique I wrote to you before:

sudokhu

I love word puzzles but when I'm at the extreme end where I can't concentrate/stressed, can't even watch mind-numbing TV, working out numbers is my saviour. 🖍️

[fartikins in reply to Hidden]

Hello - thanks for your reply - can't you take antidepressants because of your ckd - I don't really have a choice here.

[Hidden in reply to fartikins]

Not sure about antidepressants causing/affecting ckd.

I can't take antidepressants because they make me more depressed.

[fartikins]

I will try that but not really expecting anything.

[alexask]

I have seen one study that Black Seed Oil (Nigella Sativa) has beneficial effects for UTI's hilarispublisher.com/open-a....

[alexask in reply to alexask]

Black seed oil would also seem to have some benefit against kidney injury so you may get a double benefit! : pubmed.ncbi.nlm.nih.gov/344...

[fartikins in reply to alexask]

Thanks for that.

[mal444]

Hi. I also have had a bad uti infection from being abroad for last 6 weeks. I was in thailand. Constant urge to pee. Bladder pressure. Epididymo-orchitis pain.

Was given ciprofloxicin abroad for 5 days did nothing. Came home and was given clarithromycin for a week and pain went from my testicles but uti remanied. Went gp and was told to get a sexual health check considering i wasnt with anyone at all which i found bizarre. Anyway did what they asked and all negative as i knew it would be. Was given ofloxacin for 2 weeks and still same symptoms. Gp did a urine test and finally said there is pus cells showing and put me on another 4 weeks of ofloxacin. Is there no end to this. Why wont it clear. Im really worried and stressed out and feel like I will go A@E if it gets worse.

Has anyone ever experienced the same

[fartikins in reply to mal444]

Yes - I have that - they just cannot clear it up.

[Lettuce55]

so sorry to hear this , I have chronic uti, infections are rarely found but Ckd is getting worse , have tried everything going - it’s challenging and saps your strength and affects my quality of life now !

[fartikins in reply to Lettuce55]

oh how true your words are - I have no quality of life now - its all visits to the drs hospital and blood tests = I have no energy for anything else.