CKD stage 3, proteinurea. High BP

[Pitva]

looking for advice from ckd patients with high BP and proteinuria who have successfully managed to stop the progression of the disease. Please elaborate your diet restrictions and anything else that you followed.

[Bassetmommer NKF Ambassador]

Just to be clear, you cannot stop the progression of CKD. You can slow it down. I did for over 6 years. Here is how: no meat, no processed foods. Whole natural foods. Lose weight if you need to. Low carbs, lots of veggies. If you are diabetic, follow the required diet and medications. Keep you BP stable and low if possible. Lots of water. And last but most important, get educated. Take classes, research info, there is a ton of info out there. National Kidney Foundation is the best and most accurate. Watch out for people saying they have a cure; there is no cure.

[Pitva in reply to Bassetmommer]

Thank you. So did your CKD eventually progressed to next stage? I am not diabetic. You mentioned low carb. Any particular grains that you consumed 3 times a day that filled your appetite? Vegetables alone don’t satisfy me so I need a grain (barley) and some dairy substitute.

[Bassetmommer NKF Ambassador in reply to Pitva]

not really..... rice once in a while. Small pasta rarely Oatmeal often. And yes, I went to almond milk.

[Pitva in reply to Bassetmommer]

thank you so much.

[Pitva in reply to Bassetmommer]

Hi, How did you manage to get calories to around 1500 in a day. Vegetables and almond milk won't add much calories. Small pasta may be 100 calories.Was it nuts/ coconut fat etc. Thank you.

[Bassetmommer NKF Ambassador in reply to Pitva]

who said 1500.... I did 1000 or less

[Merny5]

I have managed to maintain the progression by eating no red meat, very little protein from meat, abundance of veggies( only specific ones as I have Hyperoxaluria ) I avoid processed foods and drink a great deal more water. However, my bp remains elevated. ( around125-130 over 79-85 ish) What has your bp been and what does your nephrologist say is the target number?

[Pitva in reply to Merny5]

Thank you. my BP fluctuates between 124-139 systolic and in high 80’s diastolic during course of the day. I am on 10mg lisinopril-HCL morning, and half Metoprolol 25 mg tablet morning and evening. Haven’t talked about target number. First thing the nephrologist reduced the dose to half of lisinopril medicine as I think they added to the damage to the kidney. I also take Farxiga mg in the morning. I have been vegeterian all my life.

How do you satisfy the hunger? Vegetables don’t satisfy. Any specific grain for 3 meals of day? Any go to beverage? How much protein did you try restricting yourself to in a day? Thank you.

[Merny5 in reply to Pitva]

That is very interesting about the lisinopril. My nephrologist is the one who put me on 40 mg of that medication. I will have to ask him about it when I see him next week. To answer your questions, vegetables and nuts, satisfy my hunger, usually. I consume a few grains. When I do have bread, it is always Ezekiel bread. I don’t know exactly how many grams of protein I have per day but I would suspect it’s anywhere between 35 to maybe 55. i’m not sure but I think the danger is an animal proteins and not proteins from vegetables. Probably the biggest change I’ve made is that I drink anywhere from 70 to 90 ounces of water per day and I do not add salt to my food.

[Pitva in reply to Merny5]

Thank you.

[Pitva in reply to Merny5]

Hi, please note the response below from Attari11. He is taking rimiprill. I researched afterwards and came across this article that says -

"Ramipril was associated with the lowest incidence of all-cause mortality. Lisinopril was the least effective in lowering systolic and diastolic blood pressure and was associated with the highest incidence of all-cause mortality".

Here is the article for your reference.

pmc.ncbi.nlm.nih.gov/articl....

I have reached out to my doctor. You may want to check also.

[Merny5 in reply to Pitva]

Thank you so much for this info!!! I will bring this article along with me to my visit

[Attari11]

Hi you haven’t mentioned your age i had protein-urea issue few months back slightly rise than after i am lose weight and exercise and lots of water no red meet eating fruits and vegetables than just got the results it’s back to normal coming down hugely no more proses food cutting salt

[Pitva in reply to Attari11]

I am 53. Got diagnosed stage 3 a year ago

[Attari11]

once you fix the protein leaking issue than you will stay stage 3 long time just follow the healthy diet many people’s has the protein leaking issue still on stage 3 on long time it depends how much protein leaking there is maybe other issue about the protein leaking stay positive you will find the solution

[Pitva]

thank you. Is there an approx. amount of protein you consumed daily along with any supplements that assisted in getting rid of proteinurea?

[Attari11 in reply to Pitva]

I lost weight 83kg to 63kg within 4 months more focus on running i just start taking omega 3 its really beneficial for the kidneys than i eat once a day mostly vegetables than drink berry’s mix with strawberries cranberries blueberries smoothies i only take very small tablet rimiprill 2.5mg i will suggest take omega 3 it’s really good for blood pressure aswell make sure you get epa higher amount for the bp yes i eat protein less not every day

[Pitva in reply to Attari11]

Thank you so much for giving us the name of BP medication. It's quite revealing that how this one is better then Lisinopril per below article. I have already reached out to my doctor. pmc.ncbi.nlm.nih.gov/articl....

Back to the diet, one usually needs around 1500 calories in a day otherwise, it would be fasting. You mentioned that you ate mostly vegetables once a day, then drank berry's mix. Vegetables and Berries have very less calories. 1) How did you increase your calories? Was some fat added? 2) Did you consume any grains? 3) I didn't understand what you meant about proteins. How much protein approx. amount you consumed during day. Thank you.

[Attari11 in reply to Pitva]

Yes i eat grains i mean i eat animal protein once a week small portion mostly salmon fish even i eat red meet some time as i said please add omega 3 if you want than i would suggest which one you should take than you should exercise running 20 mints make sure when you run you feel your body should sweat you will see your bp huge difference any more question feel free to ask did you take any axciety medication if not than you should it will also help your bp to come down

[Pitva in reply to Attari11]

thank you. Yes, please provide the omega name.

[Attari11 in reply to Pitva]

Hi here is the link amzn.eu/d/aWoUHAK

[WildIris]

I eat a fair amount of nuts and miso-vegetable soups with beans and about 2 spoons of plain yogurt, which are all fairly high in protein, plus the low amounts of protein in vegetables. I always put corn in the soup, because it is high in an essential amino acid that most veggies are low in. Essential means essential to eat, because the body can't make it.

I also take losartan for blood pressure, which is a drug that is beneficial for kidneys by blocking something called angiotensin 2 receptors, which seems to directly help the kidneys. This drug has even caused slight improvements in CKD in some people.

I also eat approximately a ton of blueberries, and I'm convinced they are particularly healthful, if you like blueberries, of course. I don't eat sugar or processed food except a tablespoon or two of hummus, (which I also really like.) Its important that you find foods that you really like that won't hurt your kidneys so you won't come to feel oppressed by your diet.

And drink plenty of water.

I never had proteinuria, but my eGFR has been all over the place, between 23 and 73, it's over 60 right now, stage 2 CKD, not too abnormal for my age, When the eGFR was 23, I had hemolytic anemia and joint pain from lupus and heart problems, then the CKD diagnosis was too much. I was inspired to change my diet; within a year or two, the lupus was in remission and my heart issues faded into the distance, though my BP does still creep up sometimes. So I still take losartan.