Kok sidney peritoneal dialysis : I have... - Kidney Disease

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Kok sidney peritoneal dialysis

ckiddo profile image
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I have just started peritoneal dialysis about a month ago. My creatinine levels are very high and I am dehydrated. Anyone with similar experience? pPlease share.

Thank you



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ckiddo
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RonZone profile image
RonZone

I started PD a couple months ago, but had to stop because of a nerve issue in the Sacral Plexus causing extreme pain when the fluid was in me. So I wish I had an experience to share, but as of now I do not. I'm supposed to start using a cycler next week, so we'll see if that helps my situation, then I may have more to offer to your question if it does. Not sure if you've talked with your PD nurse but you may be using a solution that is too strong if it's pulling too much fluid out of you. I started on 1.5%. What percent solution are you currently using? Not sure about the creatine number. Mine is currently 9.4. I was hoping it would go down once I got on the cycler. Guess I'll find out and then can let you know. Hopefully others with much more experience on here will chime up soon.

RhenDutchess123 profile image
RhenDutchess123

you may need to be drinking more fluids...and dialysis does not do a good job at removing Creatine...It may take a few months for your elevated numbers to decrease...What does your PD Nurse say

Have you noticed that your PD machine puts (example) 2,000 ml of dialysate in you but it pumps out say 2200 ml? Those other 200 ml are fluid that it sucked out of your body. After 4 or more cycles, you will lose quite a bit of fluid and will need to replenish it. RonZone is accurate asking about the dialysate strength. I used a Fresenius "Red" bag which was the highest strength and the next morning, I was dizzy and couldn't walk straight. I called the center and they told me to start drinking beef broth or pickle juice to replenish the salts in my body and drink lots of fluids. They also called my wife at work and told her she should get home because they were concerned that I might fall or pass out. All was good.

Darlenia profile image
Darlenia

It takes a while for your nephrologist to tweak your PD treatment for optimum outcomes. S/he is probably keeping a close eye on your dry weight (maybe it's too low?), solution strengths (maybe it's too high?), and more. Close attention will be paid to your Kt/V values and URR. These measure the adequacy of dialysis, and determines the dialysis "recipe". Ideally Kt/V should be greater than 1.2 and URR should be above 65%. By all means, let your team know how you are feeling. And look for adjustments as you go along.

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