Really need support, prayers and advice. I'... - Kidney Disease

Kidney Disease

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Really need support, prayers and advice. I'm sad and scared.

Iloveangelarose profile image
13 Replies

My wife of 12 years was just diagnosed with kidney failure.. she's 50 years old. I'm scared. She was a little yellow and not was in and out of it so i took her to the ER. Can someone please give me some advice. Anything. She is starting dialysis as we speak.

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Iloveangelarose
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13 Replies
Bassetmommer profile image
BassetmommerNKF Ambassador

HI, Scary as it may seem, she will be feeling better soon. Dialysis may look overwhelming, but it is a treatment that will clean up her blood and make her feel so much better. Try to see if there is a class or support network withing the clinic to help both of you understand kidney disease and the options she will have. Many people live a long life being supported with dialysis. For now, there is a sister site to this one that is for people who are on dialysis

healthunlocked.com/nkf-dial...

Iloveangelarose profile image
Iloveangelarose in reply to Bassetmommer

Thank you all so much for the support it's so helpful. I really appreciate it. my wife's doing a lot better today she's able to be coherent and understand the situation. I don't know what I would have done without all your support it's really warms my heart. I wish all of you the best.

jodaer profile image
jodaer

It is scary but take a big breath and wait, I know, hard, to see what the doctors say. Chances are good the dialysis will improve her numbers.

Iloveangelarose profile image
Iloveangelarose in reply to jodaer

She's doing better today!!! Way more coherent.

Sophiebun11 profile image
Sophiebun11 in reply to Iloveangelarose

That's great. The dialysis took toxins out of her blood. she's lucky to have your support. I'm sending positive thoughts for you both.

Darlenia profile image
Darlenia

Oh - I feel for you! You're not alone. We are all here for you. I'm a care partner to my hubby - who has gone through everything - kidney failure, dialysis, transplant. The situation is soul crushing when kidney failure happens, quite literally, out of no where. When I was told of my husband's dire situation, I wanted to die before him. However, be assured that finding answers to your wife's condition will do a lot to give you focus and purpose. Kidneys rarely fail on their own, generally there's something forcing them into failure. And sometimes, the kidney failure is temporary. But, first and foremost, take care of yourself. Get a little rest, eat a good meal, and put your supercomputer brain on notice when it conjures up imaginary scenarios. Once you've equipped yourself well, your objectives for this journey will fall into place. You are your wife's guide, your role is significant. Sending hugs and encouragement your way as you seek answers to questions and plot your way.

Iloveangelarose profile image
Iloveangelarose in reply to Darlenia

Thank you soon much for your kind words. I love all of you

RoxanneKidney profile image
RoxanneKidney

This might be an acute episode caused by something yet unknown. She needs to really focus on taking care of herself: eat the right things, lose weight if need be, whatever the bad habits were. A lot of our issues stemmed from bad habits. Generally, they try medications until the GRF is under 10. Lots of doctors are over-eager and understudied. You really have to read and be your own advocate. Again this might be an acute episode due to gosh knows what, so get the diet etc. under control and control all the over variables within your power. Her numbers might improve enough to not need the machine. But doing the right things is often no fun. take Inventory and see what is in your power to do to help yourself.

Iloveangelarose profile image
Iloveangelarose in reply to RoxanneKidney

Thank you sooomuch for your support. It's been so hard to sleep. She's getting better day by day!!!

KidneyCoach profile image
KidneyCoachNKF Ambassador

This isscary. You aren't alone. Check out kidneyschool.org and a book called "Help, I Need Dialysis!" On Amazon for under $10. Also oodles of Facebook support groups. Take a gander at support organizations like AAKP, NKF, AKF, HDC and more. Ive been on dialysis for 20 years so it is doable. Ask questions. I am happy to help. Blessings

Color pic of book
Iloveangelarose profile image
Iloveangelarose in reply to KidneyCoach

Thank you soomuch! I will definitely order this book!! She's doing a little better and I have hope.

Jamok profile image
Jamok

I’m so sorry you and your wife are going through this. Dialysis will help her to feel so much better and give doctors time to discover the cause of her kidney failure. I have a genetic form of ckd so am failing slowly But I had an acute incident because I spiked calcium from taking high dose vitamin d in the presence of undiagnosed sarcoidosis. As soon as they figured that out and treated the underlying cause my kidney function went back to ‘my’ normal. I will keep you and your wife in my prayers.

Iloveangelarose profile image
Iloveangelarose in reply to Jamok

Hi and thank you so much for your reply! I am taking it day by day and she is doing so much better. Everyone on here has opened my eyes to human kindness and love. I am praying for all of you and love all of you. I wish I can take away all of your pain. I opened a new page in my life and realize people do care. Thank you so much.

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