Post XGP Right Nephrectomy

[Sh0nib4u]

Hi. I'm experiencing some weird, painful joint situation since having my right kidney removed. If I sit for any period of time my joints (ankle, knees, feet, hips) all hurt and my movement feels mechanical. My psoas muscle and wall, iliohypogastric and ilioinguinal nerves were involved in the infection, and my adrenal gland could not be spared. I've had nerve damage causing numbness and pain from my groin to knee ever since my surgery in January. I'm wondering if anyone else has some after surgery problems that seem to be unrelated to kidney loss. Anyone experiencing joint pain post surgery? Thank you!

[Michael__S]

It's something that would be best discussed with your specialist. To me it appear to be related to your nephrectomy and it's best to know what course of action you should take. It would be counter-productive to try to relax a set of muscles that might need to get slightly tighter to compensate for the void.

Things like RMT massage, acupuncture, physiotherapist and the likes could help but you need to know which direction to go first and whether or not there are any risk at the moment. You may need to wait or you might be instructed to rehab those muscles with exercises only.

[Michael__S in reply to Michael__S]

I might have read your post a bit too fast but once you know what you can and can't do, you will need to eliminate possibilities. It might be caused by your diet, some kind of reaction or else.

Or it could be related to a musculoskeletal injury. AFAIK the psoas is directly or indirectly part of the hip flexors muscles and it could create joint pain as the other muscles try to compensate. Or something above or below, it's quite complex and something physiotherapist can do best. It's their bread and butter.

I injured my hip flexor post laparoscopic surgery (pieloplasty) while I was on painkiller and was wondering why I was falling into pieces and no pain. It took me 4 months to figure it out. But it could be many other things.

[Darlenia]

I'm so sorry to hear about your nerve and joint pain! I'm caregiver to my hubby (now on dialysis) so I, personally, don't have kidney issues. But do think your symptoms merit investigation by your team. Your reference to hip, knee, feet, ankle pain caught my attention. This almost sounds like an autoimmune matter, e.g. rheumatoid arthritis and related, in my humble opinion. And, in that instance, waiting only worsens the situation over time. (My son, with similar symptoms, sees a rheumatologist for this.) On the other hand, it could be a simple thing, like a vitamin or mineral deficiency, which is common in CKD, or something other than anything mentioned here. But the bottom line is that you deserve to live a quality life. I wouldn't wait. Sending encouragement that you find answers and relief.