Vitamins and ckd 3

[Cbailey]

Hello, I am 42 years old with inherited kidney disease. I now have ckd 3. Can anyone tell me if they are on a vitamin regimen?

[Hidden]

Any supplement including vitamins should be taken after consultation with your nephrologist. Make sure you know the ingredients of each as it could affect your labs.

[Cbailey in reply to Hidden]

Good morning Mr. Kidney! I do not wish to take any herbal supplements. However, DaVita.com and the national kidney foundation states on their website that a B complex, vitamin C , vitamin D, and calcium can be given to ckd patients. I am 42 with stage 3 ckd. I have inherited kidney disease with no other symptoms except anemia. 6 other family members have this or have passed with the same thing.

My gfr was a 52 three years ago, and has since dropped to 38. I try to drink lots of water, eat less protein, and exercise. However, I was much better at all of these before covid. I used to watch everything vigorously. I would say the biggest thing that I stopped was the consistent exercise because the gym closed.

I have a lot of frustrations, because although I like my nephrolgist, he kind of dismisses most things. Other than limiting sodium and protein. Basically he tells me just to wait and that he thinks at this rate, it could be a few years before I go on the transplant list. I have babies at home and I have to fight for them! I have just read a lot about vitamins and how they can help with your overall kidney health since we loose so much with our ckd. Thank you!

[Hidden in reply to Cbailey]

Good Morning, I didn't say you couldn't take the vitamin. Neither the NKF nor DaVita knows your internal lab numbers, your doctor does. I said you shouldn't take any supplements, including vitamins unless you run it past your nephrologist. If your physician(s) okay it then it should be fine. There are many folks who see supplements, especially, but not only vitamins, that promise miracle results and take them without consulting with their doctors.Best of luck.

[Cbailey in reply to Hidden]

Mr. Kidney, yes, I’m in complete understanding to run all things by my neph. I have not taken anything or changed my diet without asking him. My problem is, that when I do, he is almost always dismisses things and go back to this disease will just progress. It is what it is mentality. So, three years ago when I was at a 52, and I asked if I should limit protein, he told me no. If I should limit anything? No, Just salt. Everything I read conflicts with that. It’s very frustrating.

[Hidden in reply to Cbailey]

If you need to find a more responsive physician will it be possible with your medical coverage? If you can't change your nephrologist, can you ask your PCP about taking the vitamin? A competent physician who knows your medical history, past and present, should be able to provide you with the guidance needed. If you are in the USA and can change physicians, you can use healthgrades.com/find-a-doctor, and when it opens enter the specialty and the name of the city and find others that will be taking new patients and accept your insurance. You can also, look up your current physician and read the reviews given by others about their expertise. Be sure to leave reviews so that others who come after you may benefit from your experience.Best of Luck.

[Cbailey in reply to Hidden]

Mr. Kidney, Thank you! He has great reviews. But he openly admits to me that he’s never had a patient this young or one that is willing to do so many changes. Since mine is inherited, it might be a bit different. He’s admitted my case baffles him and he just cant give me much information. It just seems that unless it’s putting me on a med, he doesn’t seem knowledgeable about certain foods or doing things naturally. I appreciate your response so much!

[Hidden in reply to Cbailey]

Is this doctor in a solo practice? If not, perhaps he can consult a colleague or provide you with a referral to meet with a more experienced nephrologist who is up to speed on hereditary issues with CKD. Even if he doesn't personally know as much as he needs to, he should willingly provide you with that option or at least contact another nephrologist for guidance.Keep asking questions until he gives you the information you need.

Take Care.

[Raji838 in reply to Cbailey]

do consult a nephro dietician also

[HealthBuddyMelissa]

I would ask your doctor, but you may not get a good answer. This is another of those confusing topics for patients. I personally take a men's multivitamin, a half a tablet, a few times a week. I choose the men's because apparently, they don't need as much calcium as women do. Because I am low carb for weight loss, I need to make sure I get enough of everything my body needs. I go by my labs, and so far so good.

[Bassetmommer NKF Ambassador]

Hi Cbailey,I read through your conversation with Mr. Kidney. You need to find a more responsive doctor. It is not uncommon to be dismissed at stage 3. But with proper education and support, you could remain at stage 3 for a very long time. Without, probably not so much. So yes, there are vitamins you can take but they should be checked out with the doc.

Ask for a referral to a renal dietician and if they are not forth coming, find one on your own. That is the best first step. They can go through your labs and make recommendations for nutrients and foods that should be beneficial to you specifically. Diet is so important. You may not need to add vitamins.

Having a good nephrologist is also important. They do not often connect patients at stage 3 with a nephrologist, but since CKD is in your family, it would be beneficial.

[Amrellessy66]

I’m not a dr but my son has kidney desease . It’s important to look up which foods & fruits have kidney friendly vitamins . Make a smoothly and drink it. Your next blood test will show what you are deficient in.Taking a probiotic might be helpful : my son takes Renadyl it’s good.

There’s a guy on U tube calledDadvice tv , worth watching he’s a kidney patient. Once again @food for thought” we learn this way.

If you are diabetic check with your doctor before consuming anything

[Raji838]

my docs prescribe multi vits with least potency. im in stage 2