Ckd stage 3: I have scleroderma and various... - Kidney Disease

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Ckd stage 3

irishgal profile image
6 Replies

I have scleroderma and various other autoimmune diseases as well as ckd stage 3 my GP and consultions say that it's nothing to worry about but are checking it by blood test every 6 months can you have ckd stage 3 of a good type that is not harming you?

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irishgal
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6 Replies

There are a variety of forms of CKD. There is no "good kind." Based on your blood labs you have to develop a kidney-friendly meal plan, a strong exercise program that will help you stay active for better health and watch all of your medicines, including supplements. Towards the diet, find a Renal Dietitian near you and bring your lab values with you and based on those results have the RD work with you to come up with a sensible and healthy plan. The plan will change over time based on future results of your labs. Be sure when making your appointment you also inform the RD of any other health issues you have that impact your diet, exercise and overall health in general.

orangecity41 profile image
orangecity41NKF Ambassador in reply to

good information Mr K. "Sensible and healthy plan" are key words.

Bassetmommer profile image
BassetmommerNKF Ambassador

Hi Irishgal,

You will have some challenges that others with CKD do not have to face. Sceleroderma can cause scarring to the kidneys. Treatment often includes taking NSAIDs which are very bad for the kidneys in general.

When you are working with your doctor, make sure that the approach is holistic, meaning not treating one thing and having an negative impact on something else. I was in stage 3 for years until my doctor changed a prescription for diabetes that caused issues and I went to Stage 4

Exercise is always good for you, but I understand when you have a condition that causes pain it may not always be easy to exercise. Try to do some form of movement that does not cause more pain every day.

Stage 3 CKD is totally livable. You want to stay on top of your labs to make sure your numbers stay in stage 3. A renal diet will also help to maintain the kidney function you have. Until you can see a renal dietician, there are many websites with information on diet. Here is one: davita.com/.

in reply to Bassetmommer

However, there are times when one condition can be more serious than CKD and can only be treated with an NSAID. For example, without going into a lot of detail, I am on an 81mg regimen of Aspirin per day. It's not the best but the two alternatives I was given were actually worse for my kidneys and not as beneficial for my heart. I do have to be extra careful with my diet and exercise but over the last year while on the Aspirin regimen my GFR has gone from a low of 32 to its current 57. Next labs are due in late October. In my situation, I had to consult with the cardiologist and nephrologist in a conference call to work out the details and make sure I was getting the best possible solution for both health issues. It's reviewed every March when my annual heart tests are done and every October when my stress tests are done. In my case, it had to be done so when it comes to NSAIDs, "Never say Never."

Zazzel profile image
Zazzel

Hi Irishgal,

As I'm sure you are well aware, autoimmune issues are greatly associated with inflamation. It would be helpful to find out what the type and cause of your CKD is. Was it caused by your autoimmune issues or visa versa or are they unrelated. For instance lupus which is an autoimmune disease can cause CKD. I have IGA Nephropathy which is autoimmune and I have food intolerances as well as Raynads. It is suspected that my food intolerances led or at least make my kidneys worse.

If you are not already on an anti inflammatory diet then you might consider looking into one. In particular, gluten free diets are helpful for those with lots of inflamation as well as low or no dairy, and no processed sugars. Increasing Omega 3 and reducing Omega 6 can help. Omega 3 is in fish, flax and some other foods. That is why fish oil is often recommended. Omega 6 is in most oils in various degrees. Cutting out processed foods is advisable not only for the sodium content that most CKD patients need to watch, but also because most processed foods are loaded with oils such as safflower, sunflower, corn, canola and soy oils which are high in Omega 6, as well as sugar all which cause inflamation.

Make sure your doctors are checking for hematuria ( blood in urine ) and proteinuria ( protein in urine) as those often develop in inflammatory related CKD and if it goes uncontrolled can speed progression of CKD.

Yoga also helps for inflamation. Taking a class and trying to keep up can be difficult when you are experiencing inflammatory pain. There are a lot of free yoga instructors on YouTube that offer Yoga courses specifically for your issues. I like Yoga by Adriane. She offers a wide variety of free online classes on YouTube that you can do right in your home.

irishgal profile image
irishgal

Thank you all for replying will check and see if my diet needs altering

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