Good morning from the land down under. I had an appointment with my Psych last week, he is just a beautiful human being and takes special interest in my overall well being. This being said he tells me that there is no need for concern until my creatinine hits 150 (last bloods 2 months ago 103). He says I have kidney impairment. He didn’t know what ckd was and after I explained it to him, told me that I am not chronic??? I didn’t mentioned it to him but I am having quite severe muscle loss. I am only stage 3a and hadn’t expected any changes in health until much later but it seems to be hitting me like a ton of bricks! He spoke about seeing a renal physician when my levels go up but not right now as I have a long way to go. Seeing a dietitian is not an option for me and please don’t tell me I’m not helping myself. It is simply not possible for me to eat what is recommended and to go without the nutrients I do have. One minute I have ckd, the next I haven’t. Should I be worried about it or just forget it was ever mentioned? There has been no mention of further testing or treatment until/if it gets worse. Is anyone else at this early stage of ckd (I think) in this position? It’s very confusing when being told two different stories and neither of my drs seem even a little bit concerned. Thoughts! I should mention that in the space of 3 months I lost 20kg and have since lost another 5.
My little confusing update.: Good morning... - Kidney Disease
My little confusing update.
It sounds like you need to see a nephrologist. Neither of the people specialize in kidney issues so I would be reluctant to settle for either of them.
I agree with Mike1316. It's best that you see a nephrologist for an interpretation of your creatinine and gfr based on your age, sex, and racial composition. It's well known that as one ages, the kidneys do so as well. Generally speaking, most people have around 50% (Stage 3a) kidney function around age 70. Yet, we are all unique beings with differing histories and trends. So, it's always a good idea to consult with a specialist when one has a concern.
Stage 3 at 57? Am I aging prematurely?
Oh Winter. I'm simply making generalities. Many variables go into diagnosing situations and I'm not in a position to do so - only your physician can do that. Most readings can vary based on diet, exercise, etc. And you're also based in Australia, not the US - so there may be differences there too. If you're really interested in the subject of gfr and aging, there are tables posted by Kidney International at the link below. Do talk to a specialist if you're concerned. Only doctors can speak to your own personal situation. kidney-international.org/ar...
I agree Darlenia. There were other factors taken into consideration such as blood work result other than just the eGFR that made for my diagnosis of CKD 3b, such as phosphorus, sodium , and potassium. Also other symptoms were taken into consideration. If possible, a nephrologist would be of big help.
My personal ckd journey has been led by me . I have found the I am the one who researches and brings up questions to the doctors . Look out for yourself and be persistent . Demand referrals , ask questions and get the answers . Remember doctors are human and only see what’s going on at the moment you are there . Once you are out the door , it’s on to the next patient . My ckd was caused by a med that was prescribed for way too long even after blood test showed ckd (which was never revealed to me) so in hindsight it was up to me to Lookout for me . I demanded a nephrologist and got one . Now I get answers to questions via email between appointments . He’s a good doc.
If you are losing muscle, that alone will elevate your creatinine. Creatinine is created when your muscle get broken down, either by working out (building muscle) or by lack of exercise (muscle atrophy) If you are not getting stable creatinine readings, request a cystatin-c test. Cystatin-c is less affected by muscle metabolism.
Creatinine is only going up by one every couple of months. I think it has something to do with the sudden weight loss. Thanks for the advice.
Honestly, Winter, I would make an appointment with a nephrologist and let them run their own specific tests as to better assess your individual case. Bear in mind that although two people may have the same disorder, everyone is different.
Nephrologists are trained to identify the issues that you have discussed and will better be able to give you more concrete reasons for the foamy urine, elevated creatinine levels or if you are spilling protein and how to treat it.
I would print out a copy of your labs, checking off any areas that flag out of the given ranges and ask. I would also bring a notebook and jot down your other questions vitals that day and what is discussed at the appointment. If you have a family member who can join you at the appointment and scribe for you, even better as it gives you time to focus on the discussion.
As Orange City mentioned, many factors are considered. Hydration, time of test can effect results. You will want to look at your creatinine, GFR, albumin, BUN, creatinine to albumin ratio, sodium, potassium, calcium and phosphorous levels. They are all of importance.
Yes, strenuous exercise can raise your creatinine level.
I agree with Darlenia, it is best is to bring it to a professional rather than speculate as you will have more concrete answers and put together an individual treatment plan.
Please reach out and let us know the outcome. We are here for you.
Thank you so much. Onward and upward. x
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