I have to say , upon learning my diagnosis a month ago, I felt alone and the world came crashing down on me. 2020 has been tough on me like so many others, Started the year off with a broken shoulder, then of course covid changed the world. Next I managed to get my knee surgery to replace my knee in between lock downs. Then came the social unrest and turmoil. At this point thats a very bad year but wait there is more ......... A divorce , no ones fault just different goals . So could anything else go wrong? Well my kidneys had something to say about that. Stage 3b and a bunch of words and numbers I never knew existed . I have never been a person to say I am depressed but its been tapping me on the shoulder. Today I have decided to pull myself up and do what I need to do to stick around as long as the Good Lord lets me. Heck I been through tough times before and this is just another challenge . Like my Dr said "Its not a death sentence". My daughter is getting married in Dec and Im going to dance like no ones watching !
For my daughter : I have to say , upon... - Kidney Disease
For my daughter
Hey Cowboy,
Just so know, everyone has days like that. I too have days when all the garbage that has happened gets too much and I have to retreat. Its ok, and actually healthy. You have been through a lot and then try to navigate all the information about CKD it is a lot. Take your day, rest, watch Netflix or read, go outside in nature or a garden (my choice) and see how the next day looks better. If nothing else, its more manageable.
Go practice dancing. I hear that is very therapeutic.
Thanks , you know something else that is ironic is the fact that last month I considered myself one of the people without underlying health issues in a covid world . I wish I could fire the author of this story HA HA.
You have had a tough year. Guess what? It's late September and you are still here and fighting like a champ.
My only suggestion for you is to print a copy of your post above and frame it and put it in a prominent place where you can read it every day.
It takes a strong person to get through adversity. Congratulations. Best of luck.
Thank you sir , I am one among many . We all have our fight and just seeing the good people on this site makes me feel less alone .
Good for you! I was sad at first too, but I don't believe in being sad. Learn, advocate for yourself, and make the changes. It will take time, it is hard, but you can do it. Kudos to your doctor for being optimistic, mine was not so.
Good for you! I know it’s so hard to stay on the positive path but I think you can do it! I also have those down days but you do your best to keep pushing through. Prayers for your journey
You are amazing! Never heard more inspired words! Never give up and never forget hope it's always best medicine!
Yep...We can all get busy living...or we can get busy dying
Ooooh! I love your comment! It is a choice...living to live or living to die. Every day is fresh and new...one decides how to fill it up, with negatives or positives.
Good for you. Your words are inspiring. You've been thru a lot and you're going thru a lot. You have to be proud of yourself. Please keep posting to let us know how you're doing but also to keep us inspired. We've all had struggles some more than others. But,its always good to hear some positive thoughts. Thank you.
Hey there Cowboy! Thank you for your inspirational words! I just love reading such positive posts! I too, much like the others above, have my really down days. I find I must continually search for reasons to push forward. Choosing to live your life to the fullest is always the right and better choice. I say, “Good for you and all my best!” You go to your daughter’s wedding and show the guests how you do the “Macarena”, do some line dancing (cowboy! - 😉), and lead the conga line!! Happy rug-cutting! 😊👍👍✌️
Tough year but you sound like you are on top of it, fair play. I think it’s important to keep a positive attitude. On my off days I stick on some music, always helps pull me out of the doldrums. I’d also recommend meditation if you can even if it’s only for a couple minutes. It’s a great way of clearing some head space. Exciting and possibly on occasion challenging times ahead but you sound like you’re up to the task. What doesn’t kill us makes us stronger😁
Great you are doing all the right things. This year has been particularly hard on everyone too. Family and friends are a great support but it’s good to chat to people in similar situation, it helps you get a better perspective on your condition. Not that I’d advocate being too consumed by our condition. It’s good to know the do’s and don’t’s but try as much as possible to live a normal and full life. 🙏
Yes! Living a normal life to the greatest extent possible is the best “therapy” for me. I’m soooo thankful to still be working full time. I love what I do! It consumes the majority of my days. I also have several hobbies that I love. And, I’m an avid sports fan so am really enjoying the return of professional football. (Go KC Chiefs🏈🏈)
I eat right. I drink the allotted amount of water daily (no other fluids). I take my meds on time. And I exercise daily. I go to labs and doctors’ appointments.
I do these things so I can live my life feeling and functioning as well as possible while I await the gift of a deceased donor kidney.
As I approach PD dialysis, it will be another part of my treatment plan. I’ll embrace it as I have the diet, fluid, and medications needed for me to live. I can’t imagine spending every day fretting about my kidneys and CKD in general nor the treatments (including dialysis) needed for me to live.
Jayhawker
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UPDATE: Should I be concerned about a 23 (or 10 ) point drop in gfr in a year?
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