Ketosis, BHB & PKD: Does anyone have... - Kidney Disease

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Ketosis, BHB & PKD

Quercusalba profile image
8 Replies

Does anyone have experience with ketosis and seeing results (good or bad) in kidney function? Or anyone taking BHB for that reason? There is intriguing research on this conducted by UC Santa Barbara biochemist Thomas Weimbs, postdoctoral researcher Jacob Torres and their team. They are looking specifically at PKD.

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Quercusalba profile image
Quercusalba
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8 Replies
ravm profile image
ravm

I am also interested in this. I would think it would prob do more harm as fats/protein are harder to break down by kidneys

WYOAnne profile image
WYOAnneNKF Ambassador

Have you talked about this with your nephrologist?

I think your best bet is to see a renal dietician and have him/her make a diet to follow for you. If you take copies of your labs to your dietician appointment they can see what needs to be watched and what is safe for you to eat.

I have a friend who was following a KETO diet and had more health problems due to the high fat content of the diet

Allank profile image
Allank

more about being hydrated, low protein , low carbs - including those carbs in vegs which makes a keto diet with kidney disease so hard

So, I tried the higher protein diet, not keto completely, and it just made me fatter. My body runs on carbs, which are lower in fat, than high fat and protein. However, I read a very interesting article about kidney patients using a very low protein diet with supplement of keto analogs with improvement in kidney function. These keto analogs are not ones you can just buy though. The amino acids sold over the counter are full of all kinds of stuff, and the one used in the study was like 400 dollars a month. I don't know about you, but I can not afford that. Now if you ask your doctor to prescribe it, maybe insurance will pay for it, but I am not thinking that is true.

7Aloha7 profile image
7Aloha7 in reply toHealthBuddyMelissa

Albutrix is an amino acid complex and costs $179 a month. It supplies protein with low nitrogen. The developer, Lee Hull has a book, Beat Kidney Disease and a food guide, Beat Kidney Disease Food Guide. He suggests supplementing with Albutrix and no meat! Low protein, no processed food. Has had, for example, an 81 year old man with a GFR of 11 and needing dialysis, get to a GFR of 21 and stabilize and not need dialysis.

HealthBuddyMelissa profile image
HealthBuddyMelissa in reply to7Aloha7

I am reading that book but I have not got to that drug name yet. I think you should discuss it with your doctor. I have read some very good things about taking just the amino acids and then some not so good.

HealthBuddyMelissa profile image
HealthBuddyMelissa in reply toHealthBuddyMelissa

I just looked it up and I was looking at the ingredients. I don't know if I want to take that stuff.

kuhn profile image
kuhn

I have also started keto for pkd - how is it going for you

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