Need Info

[Vickiblue]

Hello! I was diagnosed with CKD four years ago. Over the last 6 months my eGFR has decreased from 44 to 24. How concerned should I be?

[Bassetmommer NKF Ambassador]

Hi Vicki,

You should be very concerned. Are you seeing a nephrologist? I would seek answers from your doctor as to the drop. Have you changed medications? Is there a change in your medical profile? Are you taking any new over the counter medications or supplements? That is a very big drop. You went from 44 percent of your kidneys working to less than a quarter. Call today and get another lab in soon to see if this is a trend.

[Vickiblue in reply to Bassetmommer]

Thanks so much for responding. I have an appointment with my nephrologist on Dec 4. I’ve had 6 labs since May 8th with a steady decline in my eGFR and increase in creatinine (2.06). Thanks again. I’m really concerned.

[Vickiblue in reply to Vickiblue]

Also, there have been no changes in meds or anything.

[Bassetmommer NKF Ambassador in reply to Vickiblue]

Hang in there. There are many of us who have been there. I did the same thing with a decline and then was able to hold my levels now for almost 2 years without any decline through diet. See your doc and stop back for more support and info.

[Vickiblue in reply to Bassetmommer]

Will do. Thanks again.

[SwissArmy in reply to Vickiblue]

If it turns out that you will need a transplant. Start early to let your need be known. "The Big Ask...The Big Give" suggests that you use Facebook and any social media.

Tell your story.

[itzmich]

Since your diagnosis have you changed your diet, water intake, exercise routine? Has your BP been stable?

[Vickiblue in reply to itzmich]

No, I haven’t made any changes. My eGFR was stable for about three years but then suddenly started dropping.

How many of you got a second opinion somewhere along your journey?

[itzmich in reply to Vickiblue]

I see you have an appointment with your nephrologist, let us know how it went. Good luck.