CLD Stage IV

I'm new to this online community. I'm 64 years old and live alone. I was diagnosed with CKD stage IIIA 6 years ago. My renal function has plummeted three times over the past 6 years. My nephrologist had my renal function stable for the past 4 years. But my renal function plummeted again this past Dec. so I'm now at low stage IV; approximately 15% function, Creatinine 3.2.

My biopsy results as well the protein in my urine indicate that I should have "much more renal function" according to my nephrologist. He's been saying that for the past 4 years. I finally asked him this past April if it was time for us to seek input from someone else to try to figure my case out. He said he had come to the conclusion that that might be helpful.

So I'm waiting out an appointment with a nephrologist with the University of Kansas Medical Center. This has been such an emotional roller coaster which has been made more difficult due to severe anemia and chronic dehydration due to sodium deficiency. I'm hoping for some answers but realize they may not be coming. Regardless, I'm hoping for some changes in my treatment plan that will improve how well I'm feeling on a daily basis.

Meanwhile, I've begun to wrap my brain about the reality of dialysis--hopefully PD dialysis being a part of my life at some point in the future. Frankly, I'm pretty anxious about that. I'd really appreciate hearing personal experiences any of you may have regarding PD dialysis. (My nephrologist says that I'd be an excellent candidate for PD dialysis. And, I'm not planning to pursue a transplant.)

Thanks,

Margie

[RosaF_NKF]

Hi Margie and welcome to health unlocked!

[Hidden in reply to RosaF_NKF]

Thanks, RosaF🐶